It's not all about you: DNA and group privacy

Press/Media: Other

Description

Every year, in the final week of January, privacy professionals from around the world assemble in the north of Brussels for the Computers, Privacy and Data Protection Conference. In recent years, on the final day, the European Data Protection Law Review awards a young scholar award and hosts a panel to discuss the nominated papers.

In this episode of Serious Privacy, Paul Breibarth and K Royal host the second of this year’s three finalists for the EDPL Award. Please join us for a conversation with Taner Kuru, who holds a Bachelor and Master of Laws of Ankara University, in Turkey, and recently completed an advanced LL.M. in Law and Digital Technologies from the Leiden Law School in the Hague. He also just completed an internship at the United Nations Interregional Crime and Justice Research Institute (UNICRI) Centre for Artificial Intelligence and Robotics. (You can catch the first finalist from last week with Isabel Hahn on purpose limitation against big data and common practices.)

During this conversation, we discuss how Taner became interested in genetic privacy and then specifically why he researched the concept of group privacy in pertinent data protection laws, such as the European Union’s General Data Protection Regulation and Turkey’s Kişisel Verileri Koruma Kurumu (KVKK). His journey started with CRISPR babies, which led to DNA companies, such as 23andMe and AncestryDNA, and finally into posts on REDDIT and published stories on individuals who have been surprised at some of their DNA results. Given some of the dramatic accounts, Taner became intrigued about whether the privacy of individuals who share DNA is protected. In particular, how do you protect the privacy of groups?

Period21 Apr 2021

Media contributions

1

Media contributions

  • TitleIt's Not All About You: DNA and Group Privacy
    Degree of recognitionInternational
    Media name/outletSerious Privacy
    Media typeWeb
    Duration/Length/Size36:33
    Country/TerritoryNetherlands
    Date21/04/21
    DescriptionEvery year, in the final week of January, privacy professionals from around the world assemble in the north of Brussels for the . In recent years, on the final day, the awards a young scholar award and hosts a panel to discuss the nominated papers.

    In this episode of Serious Privacy, and host the second of this year’s three finalists for the EDPL Award. Please join us for a conversation with , who holds a Bachelor and Master of Laws of , in Turkey, and recently completed an advanced LL.M. in Law and Digital Technologies from the in the Hague. He also just completed an internship at the United Nations Interregional Crime and Justice Research Institute (UNICRI) Centre for Artificial Intelligence and Robotics. (You can with on purpose limitation against big data and common practices.)

    During this conversation, we discuss how Taner became interested in genetic privacy and then specifically why he researched the concept of group privacy in pertinent data protection laws, such as the and (KVKK). His journey started with CRISPR babies, which led to DNA companies, such as and , and finally into posts on and published stories on individuals who have been surprised at some of their DNA results. Given some of the dramatic accounts, Taner became intrigued about whether the privacy of individuals who share DNA is protected. In particular, how do you protect the privacy of groups?
    Producer/AuthorPaul Breitbarth and Dr. K Royal
    URLhttps://open.spotify.com/episode/4u9cEnAOSLniH96K7TSE9a?si=YwADAYhsSzKzUJLiGPCslg&nd=1&dlsi=5aa28fc066884dea
    PersonsTaner Kuru
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