Personal profile
Research interests
My research concentrates on the network of care for patients with complex, rare diseases needing highly specialized care. My case studies concentrate on primary antibody deficiency and on Down syndrome. Data science forms an increasing contribution to my research projects.
Research interests
Professor dedicated to research in the care chain focussed on Down syndrome and the immune system.
Education/Academic qualification
Medicine, PhD, Immunophenotyping of lymphocytes in healthy and immunodeficient children
… → 1999
Award Date: 28 Apr 1999
Medicine, Other, Registered as Pediatric Infectiologist/Immunologist
… → 2010
Medicine, Research Degree, Registered as Immunologist-Researcher
… → 2009
Medicine, Other, Registered as Pediatric Immunologist
… → 1999
Medicine, Other, registered as Consultant in Pediatrics
1986 → 1991
Medicine, Other, Medical Doctor's degree
1985 → 1986
Medicine, Master’s Degree
1982 → 1985
Medicine, Bachelor’s Degree
1979 → 1982
External positions
Member of the Committee for Academic Collaborative Centers in General Practice Care (ZonMW)
26 Aug 2024 → …
Member Supervisory Board (Het Laar)
1 Jan 2018 → …
Development of Immunology (Elisabeth Tweesteden Ziekenhuis)
1 Apr 2017 → …
Member Supervisory Board, profile Quality and Safety (Het Laar)
1 Jan 2017 → 31 Dec 2024
Coordinator Data Science Research (Jeroen Bosch Ziekenhuis)
1 Oct 2016 → …
Member Supervisory Board (Cosis)
1 Jun 2016 → …
Member Supervisory Board, profile Care, Quality and Safety (Cosis)
1 Jun 2016 → 31 May 2024
Coordinator Data Science, Endowed professor Tranzo (Jeroen Bosch Ziekenhuis)
16 Feb 1997 → …
Keywords
- Care chain
- Network care
- Immunology
- Immunodeficiency
- Antibody deficiency
- Rare disease
- Down syndrome
- Organization of care
- Data science
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
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SDG 3 Good Health and Well-being
Fingerprint
- 1 Similar Profiles
Collaborations and top research areas from the last five years
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Assessing validity and reliability of the Positive Health and Individual Recovery Outcomes Counter questionnaires for measuring self-reported changes in positive health
van Druten, V. P., van der Zwaard, B. C., Metz, M. J., van de Mheen, D., de Vries, E. & Nahar-van Venrooij, L. M. W., 8 Jan 2026, In: Applied Research in Quality of Life. 23 p.Research output: Contribution to journal › Article › Scientific › peer-review
Open AccessFile1 Downloads (Pure) -
Person-centered care, shared decision-making, and service modularity in colorectal cancer treatment: A mixed-method study of patient and professional perspectives
de Klerk, M., Bartels, E. A., Timmers, J., Nahar-van Venrooij, L. M. W., Kerckhoffs, A. P. M., de Vries, E. & Meijboom, B. R., 6 Mar 2026, In: PLOS ONE. 21, 3, 25 p., e0343331.Research output: Contribution to journal › Article › Scientific › peer-review
Open AccessFile -
Antibody concentration and function following SARS-CoV-2 vaccination decrease with age in adults and children with Down syndrome
Streng, B. M. M., Hensen, L. C. M., Delemarre, E. M., Binnendijk, R. S., Smits, G., Den Hartog, G., Van Der Klis, F. R., de Vries, E., Burger, J. A., van Gils, M. J., Coppus, A. M. W., Weijerman, M. E., Lamberts, R., de Graaf, G., Bont, L. J. & Wildenbeest, J. G., 2025, In: Vaccine. 73, 9 p., e128079.Research output: Contribution to journal › Article › Scientific › peer-review
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Construct validity of the measurement tools PH42 and I.ROC12 to measure positive health in a general population
van Druten, V. P., Nahar-van Venrooij, L. M. W., Tiemens, B. G., van de Mheen, D., de Vries, E. & Metz, M. J., 31 Jul 2025, (E-pub ahead of print) In: Health Care Analysis. 19 p.Research output: Contribution to journal › Article › Scientific › peer-review
Open AccessFile5 Downloads (Pure) -
Experiences of COVID-19 patients with person-centred care during cohort isolation: A mixed-method study
van Druten, V. P., Rozema, A. D., Hendriksen, T. H. G., de Vries, E., van de Mheen, D., Keijsers, C. J. P. W., van der Zwaard, B. C., Scheffelaar, A. & Nahar-van Venrooij, L. M. W., 3 Feb 2025, In: Cureus. 17, 2, 16 p., e78470.Research output: Contribution to journal › Article › Scientific › peer-review
Open AccessFile9 Downloads (Pure)
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Kansen en uitdagingen bij het gebruik van routine zorgdata voor het ontwikkelen van predictiemodellen
van Dalen, D. H. (Speaker), Kerckhoffs, A. P. M. (Speaker), van Assen, M. A. L. M. (Speaker) & de Vries, E. (Speaker)
6 Feb 2025Activity: Talk or presentation types › Oral presentation › Professional
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Vrije tekst uit HiX interpreteren met behulp van CTcue
van Dalen, D. H. (Speaker), Kerckhoffs, A. P. M. (Speaker), van Assen, M. A. L. M. (Speaker) & de Vries, E. (Speaker)
27 Nov 2024Activity: Talk or presentation types › Oral presentation › Professional
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Improving Colorectal Surgery Outcomes: Comparing Hospital-Based versus Primary Care Prehabilitation in High-Risk Patients
de Klerk, M. (Speaker), van der Linden, M. J. W. (Speaker), de Vries, E. (Speaker), Meijboom, B. R. (Speaker), Kerckhoffs, A. P. M. (Speaker) & Verdaasdonk, E. G. G. (Speaker)
27 Nov 2024Activity: Talk or presentation types › Oral presentation › Professional
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Artificial intelligence technologies' impact on the work design of healthcare professionals: A scoping review
Scholz, F. (Speaker), Sahakian, T. (Speaker), Güven, N. (Speaker), Renkema, M. (Speaker), Cuijpers, C. (Speaker), Schouten, G. (Speaker), Shulzhenko, E. (Speaker), Wouters, E. (Speaker) & de Vries, E. (Speaker)
6 Nov 2024 → 8 Nov 2024Activity: Talk or presentation types › Oral presentation › Professional
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Artificial intelligence technologies' impact on the work design of healthcare professionals: A scoping review
Scholz, F. (Speaker), Sahakian, T. (Speaker), Güven, N. (Speaker), Renkema, M. (Speaker), Cuijpers, C. (Speaker), Schouten, G. (Speaker), Shulzhenko, E. (Speaker), Wouters, E. (Speaker) & de Vries, E. (Speaker)
25 Jun 2024 → 28 Jun 2024Activity: Talk or presentation types › Oral presentation › Professional
Projects
- 1 Finished
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Al Technology Implementation into the Daily Workflow in Care Organizations: The Role of Human Resource Management
Cuijpers, C. (Researcher), Sahakian, T. (Researcher), Scholz, F. (Principal Investigator), Wouters, E. (Researcher), de Vries, E. (Researcher), Wilthagen, T. (Researcher), Antheunis, M. (Researcher), Jellinghaus, S. (Researcher) & van der Lee, C. (Researcher)
1/10/23 → 1/10/24
Project: Research project
Prizes
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Chris Voss Best Paper Award
Peters, V. (Recipient), Meijboom, B. (Recipient), Vähätalo, M. (Recipient), de Vries, E. (Recipient), Barendregt, A. (Recipient) & Bok, V. (Recipient), 19 Jun 2019
Prize
Datasets
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Modular healthcare provision for people with a complex condition
Peters, V. (Contributor), Meijboom, B. (Creator), Bunt, J. E. (Creator), Bok, L. (Creator), van Steenbergen, M. (Creator), de Winter, P. (Creator) & de Vries, E. (Creator), DataverseNL, 27 Sept 2021
DOI: 10.34894/ezhl5n, https://dataverse.nl/citation?persistentId=doi:10.34894/EZHL5N
Dataset
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Replication Data for: Modular interfaces, collaboration Turku University - Tilburg University
Peters, V. (Creator), Vähätalo, M. (Creator), Meijboom, B. (Creator), Barendregt, A. (Creator), Bok, L. (Creator) & de Vries, E. (Creator), DataverseNL, 27 Sept 2021
DOI: 10.34894/byi4jb, https://dataverse.nl/citation?persistentId=doi:10.34894/BYI4JB
Dataset
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Lessons learned from the clinical presentation of common variable immunodeficiency disorders. A systematic review and meta-analysis
Fontane Pennock-Janssen, L. (Creator), Van der Flier, M. (Creator) & de Vries, E. (Creator), Frontiers Media SA, 2021
https://www.frontiersin.org/articles/10.3389/fimmu.2021.620709/full#supplementary-material
Dataset