If you made any changes in Pure these will be visible here soon.

Personal profile

Research interests

Trained as an epidemiologist, I have developed experience in the conduct, management and analyses of large population-based studies and trials. This has resulted in publications (189, see list of publications) that are generally well cited (>3500 citations, H-index=32). In the last years, my research has focused on cancer survivorship: the short- and long term physical and psychosocial consequences of cancer and its treatment.

In 2009 I started the PROFILES (Patient Reported Outcomes Following Initial treatment and Long-term Evaluation of Survivorship) registry that combines population-based cancer registry data with patient reported outcomes (www.profilesregistry.nl). PROFILES registry has collected PRO data from over 20.000 cancer patients and survivors that I share with the academic community for free. 

As I obtained my PhD in diabetes research, I developed a special interest in the role of comorbidity in cancer survivorship and the mechanisms underlying the interaction between diseases, treatments and outcomes.   

More recently my research has shifted from doing mainly longitudinal observational studies to conducting intervention trials. I am currently the PI of two pragmatic cluster randomized trials and two individually randomized trials. All four trials investigate the hypothesized improvement of information provision, shared decision making, and survivorship care in patients with gynaecological cancer, prostate cancer or lymphoma.  

I am currently integrating my expertise in the field of cancer survivorship with the field of biological aging by collecting biomaterials from PROFILES participants. I want to understand why some cancer patients survive in relatively good health, while others develop numerous health problems after cancer and its treatment. 





  • Quality Of Life
  • Cancer
  • Epidemiology

Fingerprint Fingerprint is based on mining the text of the person's scientific documents to create an index of weighted terms, which defines the key subjects of each individual researcher.

  • 30 Similar Profiles
Survivors Medicine & Life Sciences
Neoplasms Medicine & Life Sciences
Survival Rate Medicine & Life Sciences
Endometrial Neoplasms Medicine & Life Sciences
Netherlands Medicine & Life Sciences
Hodgkin Disease Medicine & Life Sciences
Peripheral Nervous System Diseases Medicine & Life Sciences
Depression Medicine & Life Sciences

Network Recent external collaboration on country level. Dive into details by clicking on the dots.

Research Output 1999 2019

A global, incremental development method for a web-based prostate cancer treatment decision aid and usability testing in a Dutch clinical setting

Cuypers, M., Lamers, R. E. D., Kil, P. J. M., The, R., Karssen, K., van de Poll-Franse, L. V. & de Vries, M., 2019, (Accepted/In press) In : Health Informatics Journal.

Research output: Contribution to journalArticleScientificpeer-review

Open Access
Decision Support Techniques

Assessing communicative aspects of patient decision aids for localized prostate cancer treatment: A systematic review

Vromans, R., van Eenbergen, M., Pauws, S., Geleijnse, G., van der Poel, H., van de Poll-Franse, L. V. & Krahmer, E., 2019.

Research output: Contribution to conferenceAbstractOther research output

Changes in health-related quality of life among gynecologic cancer survivors during the two years after initial treatment: A longitudinal analysis

Zandbergen, N., de Rooij, B. H., Vos, C., Pijnenborg, J. M. A., Boll, D., Kruitwagen, R. F. P. M., van de Poll-Franse, L. V. & Ezendam, N. P. M., 2019, In : Acta Oncologica. 12 p.

Research output: Contribution to journalArticleScientificpeer-review

Endometrial Neoplasms
Ovarian Neoplasms

Data-driven shared decision-making on cancer treatment

Vromans, R., Hommes, S., Clouth, F., Pauws, S., Vermunt, J., Geleijnse, G., van Eenbergen, M., Verbeek, X., van de Poll-Franse, L. V. & Krahmer, E., 2019.

Research output: Contribution to conferencePosterOther research output

Do people improve health behavior after their partner is diagnosed with cancer? A prospective study in the Danish diet, cancer and health cohort

Ezendam, N. P. M., Karlsen, R. V., Christensen, J., Tjønneland, A., van de Poll-Franse, L. V., Von Heymann-Horan, A., Johansen, C. & Bidstrup, P. E., 2019, In : Acta Oncologica. 9 p.

Research output: Contribution to journalArticleScientificpeer-review

Open Access
Health Behavior
Logistic Models