A person-centered approach to study intimacy and sexuality in residential care facility (RCF) clients with dementia: Methodological considerations and a guide to study design

Research output: Contribution to journalArticleScientificpeer-review

Abstract

Background:
The person-centered perspective of residential care facility (RCF) residents with dementia with regard to their intimate and sexual lives is largely neglected in research.
Objective:
We aim to provide methodological considerations and reflections on a performed qualitative study. Recommendations and a guide to study design are provided to inform and encourage future research on the inclusion of people with dementia as participants.
Methods:
Methodological recommendations and reflections are described in chronological order of the procedure. Fragments of interviews are included for further illustration and clarification.
Results:
Considering preparation, close involvement of clinical practice, and extensive deliberation regarding study design tended to be important. Considering procedure, investment in contacts with clinical practice and authorized representatives; an introduction meeting; person-centered inclusion and consent; profound skills in interviewing participants with dementia; and flexibility in data collection were proven of importance. Considering data analysis and study quality, including field notes and aiming at a balance between study quality and practicability to enhance study ‘rigor’ were found important.
Conclusion:
Including the person-centered perspective in research on intimacy and sexuality of RCF residents with dementia, is challenging and takes a flexible a
Original languageEnglish
Pages (from-to)359-373
JournalNeuropsychological Rehabilitation
Volume41
Issue number2
DOIs
Publication statusPublished - 2017

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Interviews
Residential Care
Intimacy
Person
Sexuality
Dementia
Study Guide
Residents
Inclusion
Clinical Practice
Data Collection
Qualitative Study
Sexual
Chronological Order
Field Notes
Consent
Interviewing
Deliberation

Cite this

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title = "A person-centered approach to study intimacy and sexuality in residential care facility (RCF) clients with dementia: Methodological considerations and a guide to study design",
abstract = "Background:The person-centered perspective of residential care facility (RCF) residents with dementia with regard to their intimate and sexual lives is largely neglected in research.Objective:We aim to provide methodological considerations and reflections on a performed qualitative study. Recommendations and a guide to study design are provided to inform and encourage future research on the inclusion of people with dementia as participants.Methods:Methodological recommendations and reflections are described in chronological order of the procedure. Fragments of interviews are included for further illustration and clarification.Results:Considering preparation, close involvement of clinical practice, and extensive deliberation regarding study design tended to be important. Considering procedure, investment in contacts with clinical practice and authorized representatives; an introduction meeting; person-centered inclusion and consent; profound skills in interviewing participants with dementia; and flexibility in data collection were proven of importance. Considering data analysis and study quality, including field notes and aiming at a balance between study quality and practicability to enhance study ‘rigor’ were found important.Conclusion:Including the person-centered perspective in research on intimacy and sexuality of RCF residents with dementia, is challenging and takes a flexible a",
author = "T.S.M. Roelofs and P.J.C.M. Embregts and K.G. Luijkx",
year = "2017",
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pages = "359--373",
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AU - Luijkx, K.G.

PY - 2017

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AB - Background:The person-centered perspective of residential care facility (RCF) residents with dementia with regard to their intimate and sexual lives is largely neglected in research.Objective:We aim to provide methodological considerations and reflections on a performed qualitative study. Recommendations and a guide to study design are provided to inform and encourage future research on the inclusion of people with dementia as participants.Methods:Methodological recommendations and reflections are described in chronological order of the procedure. Fragments of interviews are included for further illustration and clarification.Results:Considering preparation, close involvement of clinical practice, and extensive deliberation regarding study design tended to be important. Considering procedure, investment in contacts with clinical practice and authorized representatives; an introduction meeting; person-centered inclusion and consent; profound skills in interviewing participants with dementia; and flexibility in data collection were proven of importance. Considering data analysis and study quality, including field notes and aiming at a balance between study quality and practicability to enhance study ‘rigor’ were found important.Conclusion:Including the person-centered perspective in research on intimacy and sexuality of RCF residents with dementia, is challenging and takes a flexible a

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