Designing a Patient Portal for Patient-Centered Care

Cross-Sectional Survey

Steve Alfons Van den Bulck*, Rosella Hermens, Karin Slegers, Bert Vandenberghe, Geert Goderis, Patrik Vankrunkelsven

*Corresponding author for this work

Research output: Contribution to journalArticleScientificpeer-review

Abstract

Background: In recent literature, patient portals are considered as important tools for the delivery of patient-centered care. To date, it is not clear how patients would conceptualize a patient portal and which health information needs they have when doing so.

Objective: This study aimed (1) to investigate health information needs, expectations, and attitudes toward a patient portal and (2) to assess whether determinants, such as patient characteristics, health literacy, and empowerment status, can predict two different variables, namely the importance people attribute to obtaining health information when using a patient portal and the expectations concerning personal health care when using a patient portal.

Methods: We conducted a cross-sectional survey of the Flemish population on what patients prefer to know about their digital health data and their expectations and attitudes toward using a patient portal to access their electronic health record. People were invited to participate in the survey through newsletters, social media, and magazines. We used a questionnaire including demographics, health characteristics, health literacy, patient empowerment, and patient portal characteristics.

Results: We received 433 completed surveys. The health information needs included features such as being notified when one's health changes (371/396, 93.7%), being notified when physical parameters increase to dangerous levels (370/395, 93.7%), observing connections between one's symptoms or diseases or biological parameters (339/398, 85.2%), viewing the evolution of one's health in function of time (333/394, 84.5%), and viewing information about the expected effect of treatment (349/395, 88.4%). Almost 90% (369/412) of respondents were interested in using a patient portal. Determinants of patients' attachment for obtaining health information on a patient portal were (1) age between 45 and 54 years (P=.05); (2) neutral (P=.03) or interested attitude (P=.008) toward shared decision making; and (3) commitment to question physicians' decisions (P=.03, R-2=0.122). Determinants of patients' expectations on improved health care by accessing a patient portal were (1) lower education level (P=.04); (2) neutral (P=.03) or interested attitude (P=.008) toward shared decision making; and (3) problems in understanding health information (P=.04; R-2=0.106).

Conclusions: The interest in using a patient portal is considerable in Flanders. People would like to receive alerts or some form of communication from a patient portal in case they need to act to manage their health. Determinants such as education, attached importance to shared decision making, difficulties in finding relevant health information, and the attached importance in questioning the decisions of physicians need to be considered in the design of a patient portal.

Original languageEnglish
Article number269
Pages (from-to)e269
Number of pages14
JournalJournal of Medical Internet Research (JMIR)
Volume20
Issue number10
DOIs
Publication statusPublished - Oct 2018

Keywords

  • cross-sectional studies
  • consumer health informatics
  • electronic health record
  • patient portal
  • personal health records
  • PERSONAL HEALTH RECORDS
  • SHARED DECISION-MAKING
  • WEB PORTALS
  • TECHNOLOGY
  • ENGAGEMENT
  • LITERACY
  • DOCTORS
  • SAFETY
  • ACCESS

Cite this

Van den Bulck, S. A., Hermens, R., Slegers, K., Vandenberghe, B., Goderis, G., & Vankrunkelsven, P. (2018). Designing a Patient Portal for Patient-Centered Care: Cross-Sectional Survey. Journal of Medical Internet Research (JMIR), 20(10), e269. [269]. https://doi.org/10.2196/jmir.9497
Van den Bulck, Steve Alfons ; Hermens, Rosella ; Slegers, Karin ; Vandenberghe, Bert ; Goderis, Geert ; Vankrunkelsven, Patrik. / Designing a Patient Portal for Patient-Centered Care : Cross-Sectional Survey. In: Journal of Medical Internet Research (JMIR). 2018 ; Vol. 20, No. 10. pp. e269.
@article{beed191431254cf8a3b31f53089e6729,
title = "Designing a Patient Portal for Patient-Centered Care: Cross-Sectional Survey",
abstract = "Background: In recent literature, patient portals are considered as important tools for the delivery of patient-centered care. To date, it is not clear how patients would conceptualize a patient portal and which health information needs they have when doing so.Objective: This study aimed (1) to investigate health information needs, expectations, and attitudes toward a patient portal and (2) to assess whether determinants, such as patient characteristics, health literacy, and empowerment status, can predict two different variables, namely the importance people attribute to obtaining health information when using a patient portal and the expectations concerning personal health care when using a patient portal.Methods: We conducted a cross-sectional survey of the Flemish population on what patients prefer to know about their digital health data and their expectations and attitudes toward using a patient portal to access their electronic health record. People were invited to participate in the survey through newsletters, social media, and magazines. We used a questionnaire including demographics, health characteristics, health literacy, patient empowerment, and patient portal characteristics.Results: We received 433 completed surveys. The health information needs included features such as being notified when one's health changes (371/396, 93.7{\%}), being notified when physical parameters increase to dangerous levels (370/395, 93.7{\%}), observing connections between one's symptoms or diseases or biological parameters (339/398, 85.2{\%}), viewing the evolution of one's health in function of time (333/394, 84.5{\%}), and viewing information about the expected effect of treatment (349/395, 88.4{\%}). Almost 90{\%} (369/412) of respondents were interested in using a patient portal. Determinants of patients' attachment for obtaining health information on a patient portal were (1) age between 45 and 54 years (P=.05); (2) neutral (P=.03) or interested attitude (P=.008) toward shared decision making; and (3) commitment to question physicians' decisions (P=.03, R-2=0.122). Determinants of patients' expectations on improved health care by accessing a patient portal were (1) lower education level (P=.04); (2) neutral (P=.03) or interested attitude (P=.008) toward shared decision making; and (3) problems in understanding health information (P=.04; R-2=0.106).Conclusions: The interest in using a patient portal is considerable in Flanders. People would like to receive alerts or some form of communication from a patient portal in case they need to act to manage their health. Determinants such as education, attached importance to shared decision making, difficulties in finding relevant health information, and the attached importance in questioning the decisions of physicians need to be considered in the design of a patient portal.",
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Van den Bulck, SA, Hermens, R, Slegers, K, Vandenberghe, B, Goderis, G & Vankrunkelsven, P 2018, 'Designing a Patient Portal for Patient-Centered Care: Cross-Sectional Survey', Journal of Medical Internet Research (JMIR), vol. 20, no. 10, 269, pp. e269. https://doi.org/10.2196/jmir.9497

Designing a Patient Portal for Patient-Centered Care : Cross-Sectional Survey. / Van den Bulck, Steve Alfons; Hermens, Rosella; Slegers, Karin; Vandenberghe, Bert; Goderis, Geert; Vankrunkelsven, Patrik.

In: Journal of Medical Internet Research (JMIR), Vol. 20, No. 10, 269, 10.2018, p. e269.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Designing a Patient Portal for Patient-Centered Care

T2 - Cross-Sectional Survey

AU - Van den Bulck, Steve Alfons

AU - Hermens, Rosella

AU - Slegers, Karin

AU - Vandenberghe, Bert

AU - Goderis, Geert

AU - Vankrunkelsven, Patrik

N1 - ©Steve Alfons Van den Bulck, Rosella Hermens, Karin Slegers, Bert Vandenberghe, Geert Goderis, Patrik Vankrunkelsven. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 01.10.2018.

PY - 2018/10

Y1 - 2018/10

N2 - Background: In recent literature, patient portals are considered as important tools for the delivery of patient-centered care. To date, it is not clear how patients would conceptualize a patient portal and which health information needs they have when doing so.Objective: This study aimed (1) to investigate health information needs, expectations, and attitudes toward a patient portal and (2) to assess whether determinants, such as patient characteristics, health literacy, and empowerment status, can predict two different variables, namely the importance people attribute to obtaining health information when using a patient portal and the expectations concerning personal health care when using a patient portal.Methods: We conducted a cross-sectional survey of the Flemish population on what patients prefer to know about their digital health data and their expectations and attitudes toward using a patient portal to access their electronic health record. People were invited to participate in the survey through newsletters, social media, and magazines. We used a questionnaire including demographics, health characteristics, health literacy, patient empowerment, and patient portal characteristics.Results: We received 433 completed surveys. The health information needs included features such as being notified when one's health changes (371/396, 93.7%), being notified when physical parameters increase to dangerous levels (370/395, 93.7%), observing connections between one's symptoms or diseases or biological parameters (339/398, 85.2%), viewing the evolution of one's health in function of time (333/394, 84.5%), and viewing information about the expected effect of treatment (349/395, 88.4%). Almost 90% (369/412) of respondents were interested in using a patient portal. Determinants of patients' attachment for obtaining health information on a patient portal were (1) age between 45 and 54 years (P=.05); (2) neutral (P=.03) or interested attitude (P=.008) toward shared decision making; and (3) commitment to question physicians' decisions (P=.03, R-2=0.122). Determinants of patients' expectations on improved health care by accessing a patient portal were (1) lower education level (P=.04); (2) neutral (P=.03) or interested attitude (P=.008) toward shared decision making; and (3) problems in understanding health information (P=.04; R-2=0.106).Conclusions: The interest in using a patient portal is considerable in Flanders. People would like to receive alerts or some form of communication from a patient portal in case they need to act to manage their health. Determinants such as education, attached importance to shared decision making, difficulties in finding relevant health information, and the attached importance in questioning the decisions of physicians need to be considered in the design of a patient portal.

AB - Background: In recent literature, patient portals are considered as important tools for the delivery of patient-centered care. To date, it is not clear how patients would conceptualize a patient portal and which health information needs they have when doing so.Objective: This study aimed (1) to investigate health information needs, expectations, and attitudes toward a patient portal and (2) to assess whether determinants, such as patient characteristics, health literacy, and empowerment status, can predict two different variables, namely the importance people attribute to obtaining health information when using a patient portal and the expectations concerning personal health care when using a patient portal.Methods: We conducted a cross-sectional survey of the Flemish population on what patients prefer to know about their digital health data and their expectations and attitudes toward using a patient portal to access their electronic health record. People were invited to participate in the survey through newsletters, social media, and magazines. We used a questionnaire including demographics, health characteristics, health literacy, patient empowerment, and patient portal characteristics.Results: We received 433 completed surveys. The health information needs included features such as being notified when one's health changes (371/396, 93.7%), being notified when physical parameters increase to dangerous levels (370/395, 93.7%), observing connections between one's symptoms or diseases or biological parameters (339/398, 85.2%), viewing the evolution of one's health in function of time (333/394, 84.5%), and viewing information about the expected effect of treatment (349/395, 88.4%). Almost 90% (369/412) of respondents were interested in using a patient portal. Determinants of patients' attachment for obtaining health information on a patient portal were (1) age between 45 and 54 years (P=.05); (2) neutral (P=.03) or interested attitude (P=.008) toward shared decision making; and (3) commitment to question physicians' decisions (P=.03, R-2=0.122). Determinants of patients' expectations on improved health care by accessing a patient portal were (1) lower education level (P=.04); (2) neutral (P=.03) or interested attitude (P=.008) toward shared decision making; and (3) problems in understanding health information (P=.04; R-2=0.106).Conclusions: The interest in using a patient portal is considerable in Flanders. People would like to receive alerts or some form of communication from a patient portal in case they need to act to manage their health. Determinants such as education, attached importance to shared decision making, difficulties in finding relevant health information, and the attached importance in questioning the decisions of physicians need to be considered in the design of a patient portal.

KW - cross-sectional studies

KW - consumer health informatics

KW - electronic health record

KW - patient portal

KW - personal health records

KW - PERSONAL HEALTH RECORDS

KW - SHARED DECISION-MAKING

KW - WEB PORTALS

KW - TECHNOLOGY

KW - ENGAGEMENT

KW - LITERACY

KW - DOCTORS

KW - SAFETY

KW - ACCESS

U2 - 10.2196/jmir.9497

DO - 10.2196/jmir.9497

M3 - Article

VL - 20

SP - e269

JO - Journal of Medical Internet Research (JMIR)

JF - Journal of Medical Internet Research (JMIR)

SN - 1438-8871

IS - 10

M1 - 269

ER -