Diabetes Attitudes, Wishes and Needs second study (DAWN2™): Cross-national benchmarking indicators for family members living with people with diabetes

K. Kovacs Burns, A. Nicolucci, R.I.G. Holt, I. Willaing, N. Hermanns, S. Kalra, J. Wens, F. Pouwer, S.E. Skovlund, M. Peyrot

Research output: Contribution to journalArticleScientificpeer-review

Abstract

Aims
The second Diabetes Attitudes, Wishes and Needs (DAWN2) study examined the experiences of family members of people with diabetes for benchmarking and identifying unmet needs or areas for improvement to assist family members and those with diabetes to effectively self-manage.
Methods
In total, 2057 family members of people with diabetes participated in an online, telephone or in-person survey designed to assess the impact of diabetes on family life, family support for people with diabetes and educational and community support.
Results
Supporting a relative with diabetes was perceived as a burden by 35.3% (range across countries 10.6–61.7%) of respondents. Over half of respondents [51.4% (22.5–76.0%)] rated their quality of life as ‘good’ or ‘very good’. However, distress about the person with diabetes was high, with 61.3% (31.5–86.4%) worried about hypoglycaemia. The impact of diabetes on aspects of life was felt by 51.8% (46.9–58.6%). The greatest negative effect was on emotional well-being [44.6% (31.8–63.0%)], although depression was less common [11.6% (4.2–20.0%)]. Many respondents did not know how to help the person with diabetes [37.1% (17.5–53.0%)] and wanted to be more involved in their care [39.4% (15.5–61.7%)]. Participation in diabetes educational programmes was low [23.1% (9.4–43.3%)], although most of those who participated found them helpful [72.1% (42.1–90.3%)].
Conclusions
Diabetes has a negative impact on family members of people with diabetes. DAWN2 provides benchmarking indicators of family members' psychosocial needs that will help identify the support required for, and from, them to improve the lives of people with diabetes and their families.
Original languageEnglish
Pages (from-to)778-788
JournalDiabetic Medicine: Journal of Diabetes UK
Volume30
Issue number7
DOIs
Publication statusPublished - 2013

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Benchmarking
Hypoglycemia
Depression
Surveys and Questionnaires

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Kovacs Burns, K. ; Nicolucci, A. ; Holt, R.I.G. ; Willaing, I. ; Hermanns, N. ; Kalra, S. ; Wens, J. ; Pouwer, F. ; Skovlund, S.E. ; Peyrot, M. / Diabetes Attitudes, Wishes and Needs second study (DAWN2™) : Cross-national benchmarking indicators for family members living with people with diabetes. In: Diabetic Medicine: Journal of Diabetes UK. 2013 ; Vol. 30, No. 7. pp. 778-788.
@article{81a64954e8a5402e8bed2ee6c82fe26d,
title = "Diabetes Attitudes, Wishes and Needs second study (DAWN2™): Cross-national benchmarking indicators for family members living with people with diabetes",
abstract = "AimsThe second Diabetes Attitudes, Wishes and Needs (DAWN2) study examined the experiences of family members of people with diabetes for benchmarking and identifying unmet needs or areas for improvement to assist family members and those with diabetes to effectively self-manage.MethodsIn total, 2057 family members of people with diabetes participated in an online, telephone or in-person survey designed to assess the impact of diabetes on family life, family support for people with diabetes and educational and community support.ResultsSupporting a relative with diabetes was perceived as a burden by 35.3{\%} (range across countries 10.6–61.7{\%}) of respondents. Over half of respondents [51.4{\%} (22.5–76.0{\%})] rated their quality of life as ‘good’ or ‘very good’. However, distress about the person with diabetes was high, with 61.3{\%} (31.5–86.4{\%}) worried about hypoglycaemia. The impact of diabetes on aspects of life was felt by 51.8{\%} (46.9–58.6{\%}). The greatest negative effect was on emotional well-being [44.6{\%} (31.8–63.0{\%})], although depression was less common [11.6{\%} (4.2–20.0{\%})]. Many respondents did not know how to help the person with diabetes [37.1{\%} (17.5–53.0{\%})] and wanted to be more involved in their care [39.4{\%} (15.5–61.7{\%})]. Participation in diabetes educational programmes was low [23.1{\%} (9.4–43.3{\%})], although most of those who participated found them helpful [72.1{\%} (42.1–90.3{\%})].ConclusionsDiabetes has a negative impact on family members of people with diabetes. DAWN2 provides benchmarking indicators of family members' psychosocial needs that will help identify the support required for, and from, them to improve the lives of people with diabetes and their families.",
author = "{Kovacs Burns}, K. and A. Nicolucci and R.I.G. Holt and I. Willaing and N. Hermanns and S. Kalra and J. Wens and F. Pouwer and S.E. Skovlund and M. Peyrot",
year = "2013",
doi = "10.1111/dme.12239",
language = "English",
volume = "30",
pages = "778--788",
journal = "Diabetic Medicine: Journal of the British Diabetic Association",
issn = "0742-3071",
publisher = "Wiley-Blackwell",
number = "7",

}

Diabetes Attitudes, Wishes and Needs second study (DAWN2™) : Cross-national benchmarking indicators for family members living with people with diabetes. / Kovacs Burns, K.; Nicolucci, A.; Holt, R.I.G.; Willaing, I.; Hermanns, N.; Kalra, S.; Wens, J.; Pouwer, F.; Skovlund, S.E.; Peyrot, M.

In: Diabetic Medicine: Journal of Diabetes UK, Vol. 30, No. 7, 2013, p. 778-788.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Diabetes Attitudes, Wishes and Needs second study (DAWN2™)

T2 - Cross-national benchmarking indicators for family members living with people with diabetes

AU - Kovacs Burns, K.

AU - Nicolucci, A.

AU - Holt, R.I.G.

AU - Willaing, I.

AU - Hermanns, N.

AU - Kalra, S.

AU - Wens, J.

AU - Pouwer, F.

AU - Skovlund, S.E.

AU - Peyrot, M.

PY - 2013

Y1 - 2013

N2 - AimsThe second Diabetes Attitudes, Wishes and Needs (DAWN2) study examined the experiences of family members of people with diabetes for benchmarking and identifying unmet needs or areas for improvement to assist family members and those with diabetes to effectively self-manage.MethodsIn total, 2057 family members of people with diabetes participated in an online, telephone or in-person survey designed to assess the impact of diabetes on family life, family support for people with diabetes and educational and community support.ResultsSupporting a relative with diabetes was perceived as a burden by 35.3% (range across countries 10.6–61.7%) of respondents. Over half of respondents [51.4% (22.5–76.0%)] rated their quality of life as ‘good’ or ‘very good’. However, distress about the person with diabetes was high, with 61.3% (31.5–86.4%) worried about hypoglycaemia. The impact of diabetes on aspects of life was felt by 51.8% (46.9–58.6%). The greatest negative effect was on emotional well-being [44.6% (31.8–63.0%)], although depression was less common [11.6% (4.2–20.0%)]. Many respondents did not know how to help the person with diabetes [37.1% (17.5–53.0%)] and wanted to be more involved in their care [39.4% (15.5–61.7%)]. Participation in diabetes educational programmes was low [23.1% (9.4–43.3%)], although most of those who participated found them helpful [72.1% (42.1–90.3%)].ConclusionsDiabetes has a negative impact on family members of people with diabetes. DAWN2 provides benchmarking indicators of family members' psychosocial needs that will help identify the support required for, and from, them to improve the lives of people with diabetes and their families.

AB - AimsThe second Diabetes Attitudes, Wishes and Needs (DAWN2) study examined the experiences of family members of people with diabetes for benchmarking and identifying unmet needs or areas for improvement to assist family members and those with diabetes to effectively self-manage.MethodsIn total, 2057 family members of people with diabetes participated in an online, telephone or in-person survey designed to assess the impact of diabetes on family life, family support for people with diabetes and educational and community support.ResultsSupporting a relative with diabetes was perceived as a burden by 35.3% (range across countries 10.6–61.7%) of respondents. Over half of respondents [51.4% (22.5–76.0%)] rated their quality of life as ‘good’ or ‘very good’. However, distress about the person with diabetes was high, with 61.3% (31.5–86.4%) worried about hypoglycaemia. The impact of diabetes on aspects of life was felt by 51.8% (46.9–58.6%). The greatest negative effect was on emotional well-being [44.6% (31.8–63.0%)], although depression was less common [11.6% (4.2–20.0%)]. Many respondents did not know how to help the person with diabetes [37.1% (17.5–53.0%)] and wanted to be more involved in their care [39.4% (15.5–61.7%)]. Participation in diabetes educational programmes was low [23.1% (9.4–43.3%)], although most of those who participated found them helpful [72.1% (42.1–90.3%)].ConclusionsDiabetes has a negative impact on family members of people with diabetes. DAWN2 provides benchmarking indicators of family members' psychosocial needs that will help identify the support required for, and from, them to improve the lives of people with diabetes and their families.

U2 - 10.1111/dme.12239

DO - 10.1111/dme.12239

M3 - Article

VL - 30

SP - 778

EP - 788

JO - Diabetic Medicine: Journal of the British Diabetic Association

JF - Diabetic Medicine: Journal of the British Diabetic Association

SN - 0742-3071

IS - 7

ER -