Everyday experiences of people living with mild cognitive impairment or dementia: A scoping review (Short version)

George Rook, Jacoba Huizenga*

*Corresponding author for this work

Research output: Contribution to journalArticleProfessional

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Abstract

Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider’s perspective.
This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home.
This study reviewed 58 research papers published between 2011 and 2021. Analysis looked at descriptive findings in these papers, rather than numerical data.
Findings were described in seven aspects of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions.
The results show many disruptions and losses in everyday life and how people try to live with these changes. In all areas of everyday life, people show a deep desire to have relationships with other people, stay engaged through participation in activities and have a sense of belonging in the community.
Original languageEnglish
Number of pages11
JournalAlzheimer Europe
Publication statusPublished - 2022

Keywords

  • ALZHEIMERS-DISEASE
  • DAILY-LIFE
  • EARLY-ONSET DEMENTIA
  • INTERVENTION RESEARCH
  • OLDER-ADULTS
  • PERSON-CENTERED CARE
  • PHYSICAL-ACTIVITY
  • SENSE
  • SOCIAL INCLUSION
  • YOUNGER PEOPLE
  • citizenship
  • dementia
  • everyday life
  • lived experience
  • living in the community
  • mild cognitive impairment

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