Experiences and needs of Dutch cancer survivors regarding lifestyle counselling: a qualitative study

BACKGROUND: Cancer survivors face various short- and long-term consequences of their disease and treatment, which may negatively impact their quality of life. Healthy lifestyle changes can have a positive effect on these consequences but current counselling does not sufficiently meet their needs. This study explores the experiences and needs of cancer survivors regarding lifestyle counselling.

METHODS: A qualitative design comprising semi-structured interviews was used. We conducted 18 interviews with Dutch adult cancer survivors with various types of cancer, including people with limited health literacy. The data were analysed using reflexive thematic analysis. This study is part of the GLINK project, which aims to develop and evaluate an integrated lifestyle intervention for cancer survivors.

RESULTS: Dutch cancer survivors experienced current lifestyle counselling as fragmented and not structurally embedded, which requires them to be proactive in seeking support. Participants expressed a desire for stronger integration of lifestyle counselling within oncological (after)care, with clear information on available options and improved accessibility in terms of location, contact with professionals, and referral pathways. They reported a need for personalised, flexible support from professionals specialized in oncology, focusing on individual needs to ensure that patients feel seen and heard.

CONCLUSIONS: This study provides insights into how lifestyle counselling for cancer survivors can be improved from the patients' perspective. These findings can enhance the initiation of lifestyle conversations and referral processes and serve as a foundation for developing an integrated lifestyle intervention for cancer survivors.