Family involvement in person-centered approaches for people with intellectual disabilities and challenging behaviors: A scoping review

Tess Tournier*, Ria Wolkorte, Alexander H. C. Hendriks, Andrew Jahoda, Petri J. C. M. Embregts

*Corresponding author for this work

Research output: Contribution to journalReview articleScientificpeer-review

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Abstract

Introduction:
Families have a significant role in the lives of people with intellectual disabilities and challenging behaviors. However, it is not clear how actively families are involved when people with intellectual disabilities and challenging behaviors are living in out-of-home care. This scoping review explored the frequency and type of family involvement in the application of a person-centered approach in the care for people with intellectual disabilities and challenging behaviors.

Methods:
Authors conducted electronic searches through six databases: Embase, Medline, Web of Science, PsycINFO, Cochrane Central, and Google Scholar (2005 to 2019) and evaluated relevant publications.

Results:
Based on the 15 articles identified, only five articles report on family involvement. In addition, frequency of contact, and how family is involved appears to differ between different person-centered approaches.

Conclusion:
More active family involvement in person-centered approaches for people with intellectual disabilities and challenging behaviors is recommended.
Original languageEnglish
Pages (from-to)349-374
JournalJournal of Mental Health Research in Intellectual Disabilities
Volume14
Issue number4
DOIs
Publication statusPublished - 2021

Keywords

  • ACTIVE SUPPORT
  • ADULTS
  • CARE
  • CHILDREN
  • CHOICE
  • LEARNING-DISABILITIES
  • LIFE
  • Person-centered approach
  • SERVICES
  • STAFF
  • family involvement
  • scoping review

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