Illness perceptions of adults with congenital heart disease and their predictive value for quality of life two years later

D. Schoormans, B.J. Mulder, J.P. van Melle, P.G. Pieper, A.P. van Dijk, G.T. Sieswerda, M.S. Hulsbergen-Zwarts, T.H. Plokker, L.G. Brunninkhuis, H.W. Vliegen, M.A.G. Sprangers

Research output: Contribution to journalArticleScientificpeer-review

Abstract

Background:
To improve patients’ quality of life (QoL) we need to identify modifiable determinants, such as illness perceptions. Patients’ illness perceptions are known to regulate emotional responses and health-behaviour. Illness perceptions comprise several components: consequences, control, coherence, changeability and emotional representations.
Aims:
To examine (a) the relation between patient characteristics and illness perceptions, and (b) the independent predictive value of illness perceptions for future QoL.
Methods:
A longitudinal study in 845 patients with congenital heart disease was conducted. Patients completed three questionnaires: the IPQ-R (illness perceptions) and two years later the SF-36 and TAAQOL-CHD (QoL). Linear regression analyses were performed relating illness perceptions to patient characteristics (sex, age, disease complexity and functional status) and QoL.
Results:
Patients with a complex defect or poor functional status reported poor illness perceptions. Independent of patient characteristics, poor illness perceptions (i.e. a strong belief that the illness has severe consequences; a weak belief that you have a coherent illness understanding and that the illness can be controlled by treatment; and a strong belief that the illness is changeable and causes negative emotions) were predictive of future QoL.
Conclusion:
Illness perceptions independently predict QoL, suggesting that QoL may be improved by altering patients’ beliefs about their illness. For example, increasing patients’ knowledge regarding their disease and informing them about treatment opportunities may enhance their QoL.
Keywords: Congenital heart disease, quality of life, illness perceptions
Original languageEnglish
Pages (from-to)86-94
JournalEuropean Journal of Cardiovascular Nursing
Volume13
Issue number1
DOIs
Publication statusPublished - 2014

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Value of Life
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Schoormans, D. ; Mulder, B.J. ; van Melle, J.P. ; Pieper, P.G. ; van Dijk, A.P. ; Sieswerda, G.T. ; Hulsbergen-Zwarts, M.S. ; Plokker, T.H. ; Brunninkhuis, L.G. ; Vliegen, H.W. ; Sprangers, M.A.G. / Illness perceptions of adults with congenital heart disease and their predictive value for quality of life two years later. In: European Journal of Cardiovascular Nursing. 2014 ; Vol. 13, No. 1. pp. 86-94.
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title = "Illness perceptions of adults with congenital heart disease and their predictive value for quality of life two years later",
abstract = "Background:To improve patients’ quality of life (QoL) we need to identify modifiable determinants, such as illness perceptions. Patients’ illness perceptions are known to regulate emotional responses and health-behaviour. Illness perceptions comprise several components: consequences, control, coherence, changeability and emotional representations.Aims:To examine (a) the relation between patient characteristics and illness perceptions, and (b) the independent predictive value of illness perceptions for future QoL.Methods:A longitudinal study in 845 patients with congenital heart disease was conducted. Patients completed three questionnaires: the IPQ-R (illness perceptions) and two years later the SF-36 and TAAQOL-CHD (QoL). Linear regression analyses were performed relating illness perceptions to patient characteristics (sex, age, disease complexity and functional status) and QoL.Results:Patients with a complex defect or poor functional status reported poor illness perceptions. Independent of patient characteristics, poor illness perceptions (i.e. a strong belief that the illness has severe consequences; a weak belief that you have a coherent illness understanding and that the illness can be controlled by treatment; and a strong belief that the illness is changeable and causes negative emotions) were predictive of future QoL.Conclusion:Illness perceptions independently predict QoL, suggesting that QoL may be improved by altering patients’ beliefs about their illness. For example, increasing patients’ knowledge regarding their disease and informing them about treatment opportunities may enhance their QoL.Keywords: Congenital heart disease, quality of life, illness perceptions",
author = "D. Schoormans and B.J. Mulder and {van Melle}, J.P. and P.G. Pieper and {van Dijk}, A.P. and G.T. Sieswerda and M.S. Hulsbergen-Zwarts and T.H. Plokker and L.G. Brunninkhuis and H.W. Vliegen and M.A.G. Sprangers",
year = "2014",
doi = "10.1177/1474515113481908",
language = "English",
volume = "13",
pages = "86--94",
journal = "European Journal of Cardiovascular Nursing",
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Schoormans, D, Mulder, BJ, van Melle, JP, Pieper, PG, van Dijk, AP, Sieswerda, GT, Hulsbergen-Zwarts, MS, Plokker, TH, Brunninkhuis, LG, Vliegen, HW & Sprangers, MAG 2014, 'Illness perceptions of adults with congenital heart disease and their predictive value for quality of life two years later', European Journal of Cardiovascular Nursing, vol. 13, no. 1, pp. 86-94. https://doi.org/10.1177/1474515113481908

Illness perceptions of adults with congenital heart disease and their predictive value for quality of life two years later. / Schoormans, D.; Mulder, B.J.; van Melle, J.P.; Pieper, P.G.; van Dijk, A.P.; Sieswerda, G.T.; Hulsbergen-Zwarts, M.S.; Plokker, T.H.; Brunninkhuis, L.G.; Vliegen, H.W.; Sprangers, M.A.G.

In: European Journal of Cardiovascular Nursing, Vol. 13, No. 1, 2014, p. 86-94.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Illness perceptions of adults with congenital heart disease and their predictive value for quality of life two years later

AU - Schoormans, D.

AU - Mulder, B.J.

AU - van Melle, J.P.

AU - Pieper, P.G.

AU - van Dijk, A.P.

AU - Sieswerda, G.T.

AU - Hulsbergen-Zwarts, M.S.

AU - Plokker, T.H.

AU - Brunninkhuis, L.G.

AU - Vliegen, H.W.

AU - Sprangers, M.A.G.

PY - 2014

Y1 - 2014

N2 - Background:To improve patients’ quality of life (QoL) we need to identify modifiable determinants, such as illness perceptions. Patients’ illness perceptions are known to regulate emotional responses and health-behaviour. Illness perceptions comprise several components: consequences, control, coherence, changeability and emotional representations.Aims:To examine (a) the relation between patient characteristics and illness perceptions, and (b) the independent predictive value of illness perceptions for future QoL.Methods:A longitudinal study in 845 patients with congenital heart disease was conducted. Patients completed three questionnaires: the IPQ-R (illness perceptions) and two years later the SF-36 and TAAQOL-CHD (QoL). Linear regression analyses were performed relating illness perceptions to patient characteristics (sex, age, disease complexity and functional status) and QoL.Results:Patients with a complex defect or poor functional status reported poor illness perceptions. Independent of patient characteristics, poor illness perceptions (i.e. a strong belief that the illness has severe consequences; a weak belief that you have a coherent illness understanding and that the illness can be controlled by treatment; and a strong belief that the illness is changeable and causes negative emotions) were predictive of future QoL.Conclusion:Illness perceptions independently predict QoL, suggesting that QoL may be improved by altering patients’ beliefs about their illness. For example, increasing patients’ knowledge regarding their disease and informing them about treatment opportunities may enhance their QoL.Keywords: Congenital heart disease, quality of life, illness perceptions

AB - Background:To improve patients’ quality of life (QoL) we need to identify modifiable determinants, such as illness perceptions. Patients’ illness perceptions are known to regulate emotional responses and health-behaviour. Illness perceptions comprise several components: consequences, control, coherence, changeability and emotional representations.Aims:To examine (a) the relation between patient characteristics and illness perceptions, and (b) the independent predictive value of illness perceptions for future QoL.Methods:A longitudinal study in 845 patients with congenital heart disease was conducted. Patients completed three questionnaires: the IPQ-R (illness perceptions) and two years later the SF-36 and TAAQOL-CHD (QoL). Linear regression analyses were performed relating illness perceptions to patient characteristics (sex, age, disease complexity and functional status) and QoL.Results:Patients with a complex defect or poor functional status reported poor illness perceptions. Independent of patient characteristics, poor illness perceptions (i.e. a strong belief that the illness has severe consequences; a weak belief that you have a coherent illness understanding and that the illness can be controlled by treatment; and a strong belief that the illness is changeable and causes negative emotions) were predictive of future QoL.Conclusion:Illness perceptions independently predict QoL, suggesting that QoL may be improved by altering patients’ beliefs about their illness. For example, increasing patients’ knowledge regarding their disease and informing them about treatment opportunities may enhance their QoL.Keywords: Congenital heart disease, quality of life, illness perceptions

U2 - 10.1177/1474515113481908

DO - 10.1177/1474515113481908

M3 - Article

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SP - 86

EP - 94

JO - European Journal of Cardiovascular Nursing

JF - European Journal of Cardiovascular Nursing

SN - 1474-5151

IS - 1

ER -