Improving cancer patient care: Development of a generic cancer consumer quality index questionnaire for cancer patient

J. Booij, M. Zegers, P.M. Evers, M. Hendriks, D. Delnoij, J.J.D.J.M. Rademakers

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Abstract

Background
To develop a Consumer Quality Index (CQI) Cancer Care questionnaire for measuring experiences with hospital care of patients with different types of cancer.
Methods
We derived quality aspects from focus group discussions, existing questionnaires and literature. We developed an experience questionnaire and sent it to 1,498 Dutch cancer patients. Another questionnaire measuring the importance of the quality aspects was sent to 600 cancer patients. Data were psychometrically analysed.
Results
The response to the experience questionnaire was 50 percent. Psychometric analysis revealed 12 reliable scales. Patients rated rapid and adequate referral, rapid start of the treatment after diagnosis, enough information and confidence in the healthcare professionals as most important themes. Hospitals received high scores for skills and cooperation of healthcare professionals and a patient-centered approach by doctors; and low scores for psychosocial guidance and information at completion of the treatment.
Conclusions
The CQI Cancer Care questionnaire is a valuable tool for the evaluation of the quality of cancer care from the patient’s perspective. Large scale implementation is necessary to determine the discriminatory powers of the questionnaire and may enable healthcare providers to improve the quality of cancer care. Preliminary results indicate that hospitals could improve their psychosocial guidance and information provision.
Keywords: Consumer Quality Index (CQI), Focus groups, Healthcare evaluation, Healthcare quality, Patient experience, Quality indicators
Original languageEnglish
Article number203
JournalBMC Cancer
Volume13
DOIs
Publication statusPublished - 2013

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    Booij, J., Zegers, M., Evers, P. M., Hendriks, M., Delnoij, D., & Rademakers, J. J. D. J. M. (2013). Improving cancer patient care: Development of a generic cancer consumer quality index questionnaire for cancer patient. BMC Cancer, 13, [203]. https://doi.org/10.1186/1471-2407-13-203