Influence of sense of competence, empathy and relationship quality on burden in dementia caregivers: A 15 months longitudinal study

Robin van den Kieboom; Ruth Mark; Liselore Snaphaan; Marcel van Assen; Inge Bongers

doi:10.1177/07334648221138545

Influence of sense of competence, empathy and relationship quality on burden in dementia caregivers: A 15 months longitudinal study

Robin van den Kieboom^*, Ruth Mark, Liselore Snaphaan, Marcel van Assen, Inge Bongers

^*Corresponding author for this work

Research output: Contribution to journal › Article › Scientific › peer-review

1 Citation (Scopus)

164 Downloads (Pure)

Abstract

Objectives:
The aim is to explore the trajectory of caregiver burden and how this relates to caregiver and contextual factors in community-dwelling dyads.

Methods:
At baseline, 201 family caregivers were included. The multidimensional construct of family caregiver burden and the effects of sense of competence, empathy, and quality of the relationship on this burden were assessed over 15 months using semi-structured interviews and questionnaires.

Results:
We found an increase of burden linked to disruptions in the caregiver’s own usual activities ( p = 0.002) and physical health complaints ( p = 0.001). Caregivers with a high sense of competence experienced lower caregiver burden during the entire caregiving process ( p < 0.001).

Discussion:
Healthcare professionals should alert family caregivers to the importance of taking care of themselves as early as possible in their new caregiver role. Caregiving is demanding and could negatively influence their own activities and physical health.

Original language	English
Pages (from-to)	464-473
Journal	Journal of Applied Gerontology
Volume	42
Issue number	3
DOIs	https://doi.org/10.1177/07334648221138545
Publication status	Published - 2023

Keywords

ALZHEIMERS-DISEASE
CRA
DEPRESSION
HEALTH
MODELS
MULTIPLE IMPUTATION
PATIENT
PROGRESSION
SATISFACTION
caregiving
dementia
longitudinal methods

Access to Document

10.1177/07334648221138545Licence: CC BY

Tranzo vd Kieboom influence of sense of competence, empathy and relationship quality JoAG 2023Final published version, 589 KBLicence: CC BY

Cite this

@article{b6c59ddf763d45ad9f19ff53324f8ac2,

title = "Influence of sense of competence, empathy and relationship quality on burden in dementia caregivers: A 15 months longitudinal study",

abstract = "Objectives: The aim is to explore the trajectory of caregiver burden and how this relates to caregiver and contextual factors in community-dwelling dyads. Methods: At baseline, 201 family caregivers were included. The multidimensional construct of family caregiver burden and the effects of sense of competence, empathy, and quality of the relationship on this burden were assessed over 15 months using semi-structured interviews and questionnaires. Results: We found an increase of burden linked to disruptions in the caregiver{\textquoteright}s own usual activities ( p = 0.002) and physical health complaints ( p = 0.001). Caregivers with a high sense of competence experienced lower caregiver burden during the entire caregiving process ( p < 0.001). Discussion: Healthcare professionals should alert family caregivers to the importance of taking care of themselves as early as possible in their new caregiver role. Caregiving is demanding and could negatively influence their own activities and physical health.",

keywords = "ALZHEIMERS-DISEASE, CRA, DEPRESSION, HEALTH, MODELS, MULTIPLE IMPUTATION, PATIENT, PROGRESSION, SATISFACTION, caregiving, dementia, longitudinal methods",

author = "{van den Kieboom}, Robin and Ruth Mark and Liselore Snaphaan and {van Assen}, Marcel and Inge Bongers",

note = "The author(s) received no financial support for the research, authorship, and/or publication of this article.",

year = "2023",

doi = "10.1177/07334648221138545",

language = "English",

volume = "42",

pages = "464--473",

journal = "Journal of Applied Gerontology",

issn = "0733-4648",

publisher = "SAGE Publications Inc.",

number = "3",

}

TY - JOUR

T1 - Influence of sense of competence, empathy and relationship quality on burden in dementia caregivers

T2 - A 15 months longitudinal study

AU - van den Kieboom, Robin

AU - Mark, Ruth

AU - Snaphaan, Liselore

AU - van Assen, Marcel

AU - Bongers, Inge

N1 - The author(s) received no financial support for the research, authorship, and/or publication of this article.

PY - 2023

Y1 - 2023

N2 - Objectives: The aim is to explore the trajectory of caregiver burden and how this relates to caregiver and contextual factors in community-dwelling dyads. Methods: At baseline, 201 family caregivers were included. The multidimensional construct of family caregiver burden and the effects of sense of competence, empathy, and quality of the relationship on this burden were assessed over 15 months using semi-structured interviews and questionnaires. Results: We found an increase of burden linked to disruptions in the caregiver’s own usual activities ( p = 0.002) and physical health complaints ( p = 0.001). Caregivers with a high sense of competence experienced lower caregiver burden during the entire caregiving process ( p < 0.001). Discussion: Healthcare professionals should alert family caregivers to the importance of taking care of themselves as early as possible in their new caregiver role. Caregiving is demanding and could negatively influence their own activities and physical health.

AB - Objectives: The aim is to explore the trajectory of caregiver burden and how this relates to caregiver and contextual factors in community-dwelling dyads. Methods: At baseline, 201 family caregivers were included. The multidimensional construct of family caregiver burden and the effects of sense of competence, empathy, and quality of the relationship on this burden were assessed over 15 months using semi-structured interviews and questionnaires. Results: We found an increase of burden linked to disruptions in the caregiver’s own usual activities ( p = 0.002) and physical health complaints ( p = 0.001). Caregivers with a high sense of competence experienced lower caregiver burden during the entire caregiving process ( p < 0.001). Discussion: Healthcare professionals should alert family caregivers to the importance of taking care of themselves as early as possible in their new caregiver role. Caregiving is demanding and could negatively influence their own activities and physical health.

KW - ALZHEIMERS-DISEASE

KW - CRA

KW - DEPRESSION

KW - HEALTH

KW - MODELS

KW - MULTIPLE IMPUTATION

KW - PATIENT

KW - PROGRESSION

KW - SATISFACTION

KW - caregiving

KW - dementia

KW - longitudinal methods

UR - http://www.scopus.com/inward/record.url?scp=85142274850&partnerID=8YFLogxK

U2 - 10.1177/07334648221138545

DO - 10.1177/07334648221138545

M3 - Article

C2 - 36382720

SN - 0733-4648

VL - 42

SP - 464

EP - 473

JO - Journal of Applied Gerontology

JF - Journal of Applied Gerontology

IS - 3

ER -

Influence of sense of competence, empathy and relationship quality on burden in dementia caregivers: A 15 months longitudinal study

Abstract

Keywords

Access to Document

Other files and links

Fingerprint

Cite this