Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers

Chandni Khemai*, Judith M. Meijers, Irma Mujezinovic, Sascha R. Bolt, Sabine Pieters, Albine Moser, Jos M. G. A. Schols, Daisy J. A. Janssen

*Corresponding author for this work

Research output: Contribution to journalArticleScientificpeer-review

4 Citations (Scopus)
112 Downloads (Pure)

Abstract

A qualitative study was conducted to examine the experiences of informal caregivers of persons with dementia pertaining interprofessional collaboration with and among healthcare professionals in home care (HC), nursing homes and during home to nursing home transitions in palliative care. Semi-structured interviews were performed with bereaved informal caregivers. Data were analysed using a critical realist approach. The two main themes that emerged were: (1) Informal caregivers' roles in interprofessional collaboration with healthcare professionals and (2) Informal caregivers' perception of interprofessional collaboration among healthcare professionals. Informal caregivers' roles were identified in three collaboration processes: information exchange, care process and shared decision-making. Interprofessional collaboration among healthcare professionals was more perceptible on the collaboration outcome level (e.g. being up to date with the health status of the person with dementia; acting proactive, being adequate and consistent in the care process; and giving a warm welcome) than on the collaboration processes level (e.g. communicating and being involved in team processes). Our study revealed that intrinsic and extrinsic factors and interprofessional collaboration among healthcare professionals affected informal caregivers' collaborative roles. In summary, our study showed that informal caregivers have important roles as team members in the continuity and quality of palliative care for persons with dementia.

Original languageEnglish
Pages (from-to)1890-1913
JournalDementia. The International Journal of Social Research and Practice
Volume21
Issue number6
DOIs
Publication statusPublished - 2022

Keywords

  • Palliative care
  • interprofessional
  • transitions
  • collaboration
  • multidisciplinary
  • interdisciplinary
  • home care
  • nursing home
  • SHARED DECISION-MAKING
  • FAMILY CAREGIVERS
  • NURSING-HOME
  • RESIDENTIAL CARE
  • OLDER PERSONS
  • INVOLVEMENT
  • EXPERIENCES
  • PEOPLE
  • PATIENT
  • COMMUNICATION

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