Involuntary care – capturing the experience of people with dementia in nursing homes

A concept mapping study

M. de Boer*, M. Depla, B. Frederiks, A.M. Negenman, J.M. Habraken, J. van Randeraad-van der Zee, P.J.C.M. Embregts, C. Hertogh

*Corresponding author for this work

Research output: Contribution to journalArticleScientificpeer-review

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Abstract

Objective: 
To avoid restraints and involuntary care caregivers should be aware if and how a patient resists care. This article focuses on behavioural expressions of people with severe dementia in nursing homes that are interpreted by their formal and informal caregivers as possible expressions of their experience of involuntary care.
Method: 
Concept mapping was used, following five steps: (1) brainstorming, (2) rating, (3) sorting, (4) statistical analysis & visual representation and (5) interpretation. Specialists (n = 12), nurses (n = 23) and relatives (n = 13) participated in separate groups.
Results: 
The views generated are grouped into clusters of behaviour, presented in graphic charts for each of the respondent groups. The large variety of behavioural symptoms includes, in all groups, not only the more obvious and direct behavioural expressions like aggression, resistance and agitation, but also more subtle behaviour such as sorrow, general discomfort or discontent.
Conclusion(s): 
In the interpretation of behavioural symptoms of people with severe dementia it is important to take into account the possibility of that person experiencing involuntary care. Increased awareness and understanding of the meaning and consequences of the behavioural expressions is an important step in improving dementia care by avoiding restraints and involuntary care to its maximum.
Original languageEnglish
Pages (from-to)498-506
JournalAging & Mental Health
Volume23
Issue number4
DOIs
Publication statusPublished - 2019

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Keywords

  • BEHAVIORS
  • Dementia
  • INTELLECTUAL DISABILITIES
  • INTERVENTION
  • MODEL
  • PHYSICAL RESTRAINTS
  • PSYCHOLOGICAL SYMPTOMS
  • QUALITY
  • behavioural symptoms
  • concept mapping
  • involuntary care
  • patient perspective
  • restraint

Cite this

de Boer, M., Depla, M., Frederiks, B., Negenman, A. M., Habraken, J. M., van Randeraad-van der Zee, J., ... Hertogh, C. (2019). Involuntary care – capturing the experience of people with dementia in nursing homes: A concept mapping study. Aging & Mental Health, 23(4), 498-506. https://doi.org/10.1080/13607863.2018.1428934
de Boer, M. ; Depla, M. ; Frederiks, B. ; Negenman, A.M. ; Habraken, J.M. ; van Randeraad-van der Zee, J. ; Embregts, P.J.C.M. ; Hertogh, C. / Involuntary care – capturing the experience of people with dementia in nursing homes : A concept mapping study. In: Aging & Mental Health. 2019 ; Vol. 23, No. 4. pp. 498-506.
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title = "Involuntary care – capturing the experience of people with dementia in nursing homes: A concept mapping study",
abstract = "Objective: To avoid restraints and involuntary care caregivers should be aware if and how a patient resists care. This article focuses on behavioural expressions of people with severe dementia in nursing homes that are interpreted by their formal and informal caregivers as possible expressions of their experience of involuntary care.Method: Concept mapping was used, following five steps: (1) brainstorming, (2) rating, (3) sorting, (4) statistical analysis & visual representation and (5) interpretation. Specialists (n = 12), nurses (n = 23) and relatives (n = 13) participated in separate groups.Results: The views generated are grouped into clusters of behaviour, presented in graphic charts for each of the respondent groups. The large variety of behavioural symptoms includes, in all groups, not only the more obvious and direct behavioural expressions like aggression, resistance and agitation, but also more subtle behaviour such as sorrow, general discomfort or discontent.Conclusion(s): In the interpretation of behavioural symptoms of people with severe dementia it is important to take into account the possibility of that person experiencing involuntary care. Increased awareness and understanding of the meaning and consequences of the behavioural expressions is an important step in improving dementia care by avoiding restraints and involuntary care to its maximum.",
keywords = "BEHAVIORS, Dementia, INTELLECTUAL DISABILITIES, INTERVENTION, MODEL, PHYSICAL RESTRAINTS, PSYCHOLOGICAL SYMPTOMS, QUALITY, behavioural symptoms, concept mapping, involuntary care, patient perspective, restraint",
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de Boer, M, Depla, M, Frederiks, B, Negenman, AM, Habraken, JM, van Randeraad-van der Zee, J, Embregts, PJCM & Hertogh, C 2019, 'Involuntary care – capturing the experience of people with dementia in nursing homes: A concept mapping study', Aging & Mental Health, vol. 23, no. 4, pp. 498-506. https://doi.org/10.1080/13607863.2018.1428934

Involuntary care – capturing the experience of people with dementia in nursing homes : A concept mapping study. / de Boer, M.; Depla, M.; Frederiks, B.; Negenman, A.M.; Habraken, J.M.; van Randeraad-van der Zee, J.; Embregts, P.J.C.M.; Hertogh, C.

In: Aging & Mental Health, Vol. 23, No. 4, 2019, p. 498-506.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Involuntary care – capturing the experience of people with dementia in nursing homes

T2 - A concept mapping study

AU - de Boer, M.

AU - Depla, M.

AU - Frederiks, B.

AU - Negenman, A.M.

AU - Habraken, J.M.

AU - van Randeraad-van der Zee, J.

AU - Embregts, P.J.C.M.

AU - Hertogh, C.

PY - 2019

Y1 - 2019

N2 - Objective: To avoid restraints and involuntary care caregivers should be aware if and how a patient resists care. This article focuses on behavioural expressions of people with severe dementia in nursing homes that are interpreted by their formal and informal caregivers as possible expressions of their experience of involuntary care.Method: Concept mapping was used, following five steps: (1) brainstorming, (2) rating, (3) sorting, (4) statistical analysis & visual representation and (5) interpretation. Specialists (n = 12), nurses (n = 23) and relatives (n = 13) participated in separate groups.Results: The views generated are grouped into clusters of behaviour, presented in graphic charts for each of the respondent groups. The large variety of behavioural symptoms includes, in all groups, not only the more obvious and direct behavioural expressions like aggression, resistance and agitation, but also more subtle behaviour such as sorrow, general discomfort or discontent.Conclusion(s): In the interpretation of behavioural symptoms of people with severe dementia it is important to take into account the possibility of that person experiencing involuntary care. Increased awareness and understanding of the meaning and consequences of the behavioural expressions is an important step in improving dementia care by avoiding restraints and involuntary care to its maximum.

AB - Objective: To avoid restraints and involuntary care caregivers should be aware if and how a patient resists care. This article focuses on behavioural expressions of people with severe dementia in nursing homes that are interpreted by their formal and informal caregivers as possible expressions of their experience of involuntary care.Method: Concept mapping was used, following five steps: (1) brainstorming, (2) rating, (3) sorting, (4) statistical analysis & visual representation and (5) interpretation. Specialists (n = 12), nurses (n = 23) and relatives (n = 13) participated in separate groups.Results: The views generated are grouped into clusters of behaviour, presented in graphic charts for each of the respondent groups. The large variety of behavioural symptoms includes, in all groups, not only the more obvious and direct behavioural expressions like aggression, resistance and agitation, but also more subtle behaviour such as sorrow, general discomfort or discontent.Conclusion(s): In the interpretation of behavioural symptoms of people with severe dementia it is important to take into account the possibility of that person experiencing involuntary care. Increased awareness and understanding of the meaning and consequences of the behavioural expressions is an important step in improving dementia care by avoiding restraints and involuntary care to its maximum.

KW - BEHAVIORS

KW - Dementia

KW - INTELLECTUAL DISABILITIES

KW - INTERVENTION

KW - MODEL

KW - PHYSICAL RESTRAINTS

KW - PSYCHOLOGICAL SYMPTOMS

KW - QUALITY

KW - behavioural symptoms

KW - concept mapping

KW - involuntary care

KW - patient perspective

KW - restraint

U2 - 10.1080/13607863.2018.1428934

DO - 10.1080/13607863.2018.1428934

M3 - Article

VL - 23

SP - 498

EP - 506

JO - Aging & Mental Health

JF - Aging & Mental Health

SN - 1360-7863

IS - 4

ER -

de Boer M, Depla M, Frederiks B, Negenman AM, Habraken JM, van Randeraad-van der Zee J et al. Involuntary care – capturing the experience of people with dementia in nursing homes: A concept mapping study. Aging & Mental Health. 2019;23(4):498-506. https://doi.org/10.1080/13607863.2018.1428934