Living with support

Experiences of people with mild intellectual disability

S.A.H. Giesbers*, A.H.C. Hendriks, A. Jahoda, R.P. Hastings, P.J.C.M. Embregts

*Corresponding author for this work

Research output: Contribution to journalArticleScientificpeer-review

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Abstract

Background:
To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks.

Method:
Six individuals with mild intellectual disability, living in community-based settings, were interviewed following a semi-structured format. In-depth accounts of participants’ support experiences were established using Interpretative Phenomenological Analysis.
Results:
Three main themes were identified: relationships with staff placed within a personal history, relationships with staff within an organisational context, and staff support and interviewees’ place in the world.

Conclusions:
Relationships with staff were often one of the closest and most significant social relationships participants had. As living in the community had not necessarily led to meaningful inclusion for participants, the findings point at the important role of staff in supporting and facilitating friendships and close relationships of people with intellectual disability.
Original languageEnglish
Pages (from-to)446-456
JournalJournal of Applied Research in Intellectual Disabilities
Volume32
Issue number2
DOIs
Publication statusPublished - 2019

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disability
Disabled Persons
staff
experience
inclusion
friendship
community

Keywords

  • ASSOCIATION
  • CARE
  • INCLUSION
  • MENTAL-HEALTH
  • QUALITY
  • SELF
  • SERVICE USERS
  • SOCIAL NETWORKS
  • STAFF
  • STIGMA

Cite this

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title = "Living with support: Experiences of people with mild intellectual disability",
abstract = "Background:To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks.Method:Six individuals with mild intellectual disability, living in community-based settings, were interviewed following a semi-structured format. In-depth accounts of participants’ support experiences were established using Interpretative Phenomenological Analysis.Results:Three main themes were identified: relationships with staff placed within a personal history, relationships with staff within an organisational context, and staff support and interviewees’ place in the world.Conclusions: Relationships with staff were often one of the closest and most significant social relationships participants had. As living in the community had not necessarily led to meaningful inclusion for participants, the findings point at the important role of staff in supporting and facilitating friendships and close relationships of people with intellectual disability.",
keywords = "ASSOCIATION, CARE, INCLUSION, MENTAL-HEALTH, QUALITY, SELF, SERVICE USERS, SOCIAL NETWORKS, STAFF, STIGMA",
author = "S.A.H. Giesbers and A.H.C. Hendriks and A. Jahoda and R.P. Hastings and P.J.C.M. Embregts",
year = "2019",
doi = "10.1111/jar.12542",
language = "English",
volume = "32",
pages = "446--456",
journal = "Journal of Applied Research in Intellectual Disabilities",
issn = "1360-2322",
publisher = "Wiley-Blackwell",
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}

Living with support : Experiences of people with mild intellectual disability. / Giesbers, S.A.H.; Hendriks, A.H.C.; Jahoda, A.; Hastings, R.P.; Embregts, P.J.C.M.

In: Journal of Applied Research in Intellectual Disabilities, Vol. 32, No. 2, 2019, p. 446-456.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Living with support

T2 - Experiences of people with mild intellectual disability

AU - Giesbers, S.A.H.

AU - Hendriks, A.H.C.

AU - Jahoda, A.

AU - Hastings, R.P.

AU - Embregts, P.J.C.M.

PY - 2019

Y1 - 2019

N2 - Background:To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks.Method:Six individuals with mild intellectual disability, living in community-based settings, were interviewed following a semi-structured format. In-depth accounts of participants’ support experiences were established using Interpretative Phenomenological Analysis.Results:Three main themes were identified: relationships with staff placed within a personal history, relationships with staff within an organisational context, and staff support and interviewees’ place in the world.Conclusions: Relationships with staff were often one of the closest and most significant social relationships participants had. As living in the community had not necessarily led to meaningful inclusion for participants, the findings point at the important role of staff in supporting and facilitating friendships and close relationships of people with intellectual disability.

AB - Background:To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks.Method:Six individuals with mild intellectual disability, living in community-based settings, were interviewed following a semi-structured format. In-depth accounts of participants’ support experiences were established using Interpretative Phenomenological Analysis.Results:Three main themes were identified: relationships with staff placed within a personal history, relationships with staff within an organisational context, and staff support and interviewees’ place in the world.Conclusions: Relationships with staff were often one of the closest and most significant social relationships participants had. As living in the community had not necessarily led to meaningful inclusion for participants, the findings point at the important role of staff in supporting and facilitating friendships and close relationships of people with intellectual disability.

KW - ASSOCIATION

KW - CARE

KW - INCLUSION

KW - MENTAL-HEALTH

KW - QUALITY

KW - SELF

KW - SERVICE USERS

KW - SOCIAL NETWORKS

KW - STAFF

KW - STIGMA

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SN - 1360-2322

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