Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid: Results at one-year follow-up in the PCPCC trial

M. Cuypers; R.E.D. Lamers; P.J.M. Kil; L.V. van der Poll-Franse; M. de Vries

doi:10.1016/j.pec.2018.10.006

Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid: Results at one-year follow-up in the PCPCC trial

M. Cuypers^*, R.E.D. Lamers, P.J.M. Kil, L.V. van der Poll-Franse, M. de Vries

^*Corresponding author for this work

Medical and Clinical Psychology

Research output: Contribution to journal › Article › Scientific › peer-review

21 Citations (Scopus)

Abstract

Objective
To investigate the effect of including an online decision aid (DA) during prostate cancer treatment counseling on decisional regret and information satisfaction in a one-year follow-up.

Methods
Within a cluster RCT, 18 Dutch hospitals were randomized to DA counseling or care-as-usual, patients (n = 382) initially completed questionnaires directly after treatment decision making. Six and twelve months later regret (Decisional Regret Scale) and information satisfaction (SCIP-B) were assessed. Anxious and depressive symptoms (HADS) was included as possible covariate.

Results
After 12 months, 43 participants (15%) regretted their treatment choice and 105 participants (36%) were dissatisfied with the information that was received at the time of decision-making, regardless of being exposed to the DA. Anxious and depressive symptoms at follow-up were associated with regret and information dissatisfaction.

Conclusion
No long-term benefical effects emerged from DA usage compared to patients who underwent standard counseling.

Original language	English
Pages (from-to)	424-428
Journal	Patient Education and Counseling
Volume	102
Issue number	3
DOIs	https://doi.org/10.1016/j.pec.2018.10.006
Publication status	Published - 2019

Keywords

Decision aid
IMPACT
OUTCOMES
Patient-reported outcomes
Prostate cancer
Regret
Satisfaction
Shared decision making
Treatment

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10.1016/j.pec.2018.10.006

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Cuypers, M., Lamers, R. E. D., Kil, P. J. M., van der Poll-Franse, L. V., & de Vries, M. (2019). Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid: Results at one-year follow-up in the PCPCC trial. Patient Education and Counseling, 102(3), 424-428. https://doi.org/10.1016/j.pec.2018.10.006

@article{419abb76ab2b40e29919d255a3b7916c,

title = "Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid: Results at one-year follow-up in the PCPCC trial",

abstract = "ObjectiveTo investigate the effect of including an online decision aid (DA) during prostate cancer treatment counseling on decisional regret and information satisfaction in a one-year follow-up.MethodsWithin a cluster RCT, 18 Dutch hospitals were randomized to DA counseling or care-as-usual, patients (n = 382) initially completed questionnaires directly after treatment decision making. Six and twelve months later regret (Decisional Regret Scale) and information satisfaction (SCIP-B) were assessed. Anxious and depressive symptoms (HADS) was included as possible covariate.ResultsAfter 12 months, 43 participants (15%) regretted their treatment choice and 105 participants (36%) were dissatisfied with the information that was received at the time of decision-making, regardless of being exposed to the DA. Anxious and depressive symptoms at follow-up were associated with regret and information dissatisfaction.ConclusionNo long-term benefical effects emerged from DA usage compared to patients who underwent standard counseling.",

keywords = "Decision aid, IMPACT, OUTCOMES, Patient-reported outcomes, Prostate cancer, Regret, Satisfaction, Shared decision making, Treatment",

author = "M. Cuypers and R.E.D. Lamers and P.J.M. Kil and {van der Poll-Franse}, L.V. and {de Vries}, M.",

year = "2019",

doi = "10.1016/j.pec.2018.10.006",

language = "English",

volume = "102",

pages = "424--428",

journal = "Patient Education and Counseling",

issn = "0738-3991",

publisher = "Elsevier Ireland Ltd",

number = "3",

}

Cuypers, M, Lamers, RED, Kil, PJM, van der Poll-Franse, LV & de Vries, M 2019, 'Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid: Results at one-year follow-up in the PCPCC trial', Patient Education and Counseling, vol. 102, no. 3, pp. 424-428. https://doi.org/10.1016/j.pec.2018.10.006

Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid: Results at one-year follow-up in the PCPCC trial. / Cuypers, M.; Lamers, R.E.D.; Kil, P.J.M. et al.
In: Patient Education and Counseling, Vol. 102, No. 3, 2019, p. 424-428.

Research output: Contribution to journal › Article › Scientific › peer-review

TY - JOUR

T1 - Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid

T2 - Results at one-year follow-up in the PCPCC trial

AU - Cuypers, M.

AU - Lamers, R.E.D.

AU - Kil, P.J.M.

AU - van der Poll-Franse, L.V.

AU - de Vries, M.

PY - 2019

Y1 - 2019

N2 - ObjectiveTo investigate the effect of including an online decision aid (DA) during prostate cancer treatment counseling on decisional regret and information satisfaction in a one-year follow-up.MethodsWithin a cluster RCT, 18 Dutch hospitals were randomized to DA counseling or care-as-usual, patients (n = 382) initially completed questionnaires directly after treatment decision making. Six and twelve months later regret (Decisional Regret Scale) and information satisfaction (SCIP-B) were assessed. Anxious and depressive symptoms (HADS) was included as possible covariate.ResultsAfter 12 months, 43 participants (15%) regretted their treatment choice and 105 participants (36%) were dissatisfied with the information that was received at the time of decision-making, regardless of being exposed to the DA. Anxious and depressive symptoms at follow-up were associated with regret and information dissatisfaction.ConclusionNo long-term benefical effects emerged from DA usage compared to patients who underwent standard counseling.

AB - ObjectiveTo investigate the effect of including an online decision aid (DA) during prostate cancer treatment counseling on decisional regret and information satisfaction in a one-year follow-up.MethodsWithin a cluster RCT, 18 Dutch hospitals were randomized to DA counseling or care-as-usual, patients (n = 382) initially completed questionnaires directly after treatment decision making. Six and twelve months later regret (Decisional Regret Scale) and information satisfaction (SCIP-B) were assessed. Anxious and depressive symptoms (HADS) was included as possible covariate.ResultsAfter 12 months, 43 participants (15%) regretted their treatment choice and 105 participants (36%) were dissatisfied with the information that was received at the time of decision-making, regardless of being exposed to the DA. Anxious and depressive symptoms at follow-up were associated with regret and information dissatisfaction.ConclusionNo long-term benefical effects emerged from DA usage compared to patients who underwent standard counseling.

KW - Decision aid

KW - IMPACT

KW - OUTCOMES

KW - Patient-reported outcomes

KW - Prostate cancer

KW - Regret

KW - Satisfaction

KW - Shared decision making

KW - Treatment

U2 - 10.1016/j.pec.2018.10.006

DO - 10.1016/j.pec.2018.10.006

M3 - Article

SN - 0738-3991

VL - 102

SP - 424

EP - 428

JO - Patient Education and Counseling

JF - Patient Education and Counseling

IS - 3

ER -

Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid: Results at one-year follow-up in the PCPCC trial

Abstract

Keywords

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