Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia

A. Ferdiana, M.W.M. Post, N. King, U. Bültmann, J.J.L. Van Der Klink

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Abstract

Purpose:
Knowledge on the meaning of quality of life in individuals with spinal cord injury in developing countries is limited. This study aims to explore the meaning and components of quality of life for individuals with spinal cord injury in a rural area in Indonesia.
Method:
Data were obtained through semi-structured interviews with 12 individuals with paraplegia (8 males, 4 females) aged 24–67 years. Thematic analysis was used to identify themes that constitute meaning and components of quality of life.
Results:
Quality of life was not an easily understood concept, while “life satisfaction” and “happiness” were. Life satisfaction was associated with a person’s feeling when achieving goals or dreams and related to fulfillment of needs. Thirteen components of life satisfaction were identified and categorized into five domains as follows: (1) participation: earning income and work, being useful to others, community participation, and having skills and knowledge, (2) social support: social support, social relationship, (3) relationship with God: injury is God’s will, praying, (4) independence: being independent, mobility and accessibility, and health, and (5) psychological resources: accepting the condition, maintaining goals and motivation.
Conclusions:
Social, cultural and religious influences were prominent in the perception of life satisfaction. The measurement of quality of life for individuals with spinal cord injury in Indonesia needs to consider locally perceived meaning and components of quality of life.
Implications for Rehabilitation
Financial, social and health needs of individuals with spinal cord injury in Indonesia must be immediately addressed. To increase financial independence, rehabilitation professionals should equip individuals with spinal cord injury with adequate self-employment skills. Sociocultural and religious aspects should be considered in the measurement of quality of life.
Original languageEnglish
Pages (from-to)1183-1191
JournalDisability and Rehabilitation
Volume40
Issue number10
DOIs
Publication statusPublished - 2018

Fingerprint

Indonesia
Happiness
Developing Countries
Interviews
Wounds and Injuries

Keywords

  • EARTHQUAKE
  • EPIDEMIOLOGY
  • HEALTH
  • QUESTIONNAIRE
  • Quality of life
  • SATISFACTION
  • SPIRITUALITY
  • TRANSLATION
  • VALIDATION
  • WHOQOL
  • WORLD
  • developing countries
  • disabled persons
  • spinal cord injury

Cite this

Ferdiana, A. ; Post, M.W.M. ; King, N. ; Bültmann, U. ; Van Der Klink, J.J.L. / Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia. In: Disability and Rehabilitation. 2018 ; Vol. 40, No. 10. pp. 1183-1191.
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abstract = "Purpose: Knowledge on the meaning of quality of life in individuals with spinal cord injury in developing countries is limited. This study aims to explore the meaning and components of quality of life for individuals with spinal cord injury in a rural area in Indonesia.Method: Data were obtained through semi-structured interviews with 12 individuals with paraplegia (8 males, 4 females) aged 24–67 years. Thematic analysis was used to identify themes that constitute meaning and components of quality of life.Results: Quality of life was not an easily understood concept, while “life satisfaction” and “happiness” were. Life satisfaction was associated with a person’s feeling when achieving goals or dreams and related to fulfillment of needs. Thirteen components of life satisfaction were identified and categorized into five domains as follows: (1) participation: earning income and work, being useful to others, community participation, and having skills and knowledge, (2) social support: social support, social relationship, (3) relationship with God: injury is God’s will, praying, (4) independence: being independent, mobility and accessibility, and health, and (5) psychological resources: accepting the condition, maintaining goals and motivation.Conclusions: Social, cultural and religious influences were prominent in the perception of life satisfaction. The measurement of quality of life for individuals with spinal cord injury in Indonesia needs to consider locally perceived meaning and components of quality of life.Implications for RehabilitationFinancial, social and health needs of individuals with spinal cord injury in Indonesia must be immediately addressed. To increase financial independence, rehabilitation professionals should equip individuals with spinal cord injury with adequate self-employment skills. Sociocultural and religious aspects should be considered in the measurement of quality of life.",
keywords = "EARTHQUAKE, EPIDEMIOLOGY, HEALTH, QUESTIONNAIRE, Quality of life, SATISFACTION, SPIRITUALITY, TRANSLATION, VALIDATION, WHOQOL, WORLD, developing countries, disabled persons, spinal cord injury",
author = "A. Ferdiana and M.W.M. Post and N. King and U. B{\"u}ltmann and {Van Der Klink}, J.J.L.",
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Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia. / Ferdiana, A.; Post, M.W.M.; King, N.; Bültmann, U.; Van Der Klink, J.J.L.

In: Disability and Rehabilitation, Vol. 40, No. 10, 2018, p. 1183-1191.

Research output: Contribution to journalArticleScientificpeer-review

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T1 - Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia

AU - Ferdiana, A.

AU - Post, M.W.M.

AU - King, N.

AU - Bültmann, U.

AU - Van Der Klink, J.J.L.

PY - 2018

Y1 - 2018

N2 - Purpose: Knowledge on the meaning of quality of life in individuals with spinal cord injury in developing countries is limited. This study aims to explore the meaning and components of quality of life for individuals with spinal cord injury in a rural area in Indonesia.Method: Data were obtained through semi-structured interviews with 12 individuals with paraplegia (8 males, 4 females) aged 24–67 years. Thematic analysis was used to identify themes that constitute meaning and components of quality of life.Results: Quality of life was not an easily understood concept, while “life satisfaction” and “happiness” were. Life satisfaction was associated with a person’s feeling when achieving goals or dreams and related to fulfillment of needs. Thirteen components of life satisfaction were identified and categorized into five domains as follows: (1) participation: earning income and work, being useful to others, community participation, and having skills and knowledge, (2) social support: social support, social relationship, (3) relationship with God: injury is God’s will, praying, (4) independence: being independent, mobility and accessibility, and health, and (5) psychological resources: accepting the condition, maintaining goals and motivation.Conclusions: Social, cultural and religious influences were prominent in the perception of life satisfaction. The measurement of quality of life for individuals with spinal cord injury in Indonesia needs to consider locally perceived meaning and components of quality of life.Implications for RehabilitationFinancial, social and health needs of individuals with spinal cord injury in Indonesia must be immediately addressed. To increase financial independence, rehabilitation professionals should equip individuals with spinal cord injury with adequate self-employment skills. Sociocultural and religious aspects should be considered in the measurement of quality of life.

AB - Purpose: Knowledge on the meaning of quality of life in individuals with spinal cord injury in developing countries is limited. This study aims to explore the meaning and components of quality of life for individuals with spinal cord injury in a rural area in Indonesia.Method: Data were obtained through semi-structured interviews with 12 individuals with paraplegia (8 males, 4 females) aged 24–67 years. Thematic analysis was used to identify themes that constitute meaning and components of quality of life.Results: Quality of life was not an easily understood concept, while “life satisfaction” and “happiness” were. Life satisfaction was associated with a person’s feeling when achieving goals or dreams and related to fulfillment of needs. Thirteen components of life satisfaction were identified and categorized into five domains as follows: (1) participation: earning income and work, being useful to others, community participation, and having skills and knowledge, (2) social support: social support, social relationship, (3) relationship with God: injury is God’s will, praying, (4) independence: being independent, mobility and accessibility, and health, and (5) psychological resources: accepting the condition, maintaining goals and motivation.Conclusions: Social, cultural and religious influences were prominent in the perception of life satisfaction. The measurement of quality of life for individuals with spinal cord injury in Indonesia needs to consider locally perceived meaning and components of quality of life.Implications for RehabilitationFinancial, social and health needs of individuals with spinal cord injury in Indonesia must be immediately addressed. To increase financial independence, rehabilitation professionals should equip individuals with spinal cord injury with adequate self-employment skills. Sociocultural and religious aspects should be considered in the measurement of quality of life.

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KW - EPIDEMIOLOGY

KW - HEALTH

KW - QUESTIONNAIRE

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KW - SATISFACTION

KW - SPIRITUALITY

KW - TRANSLATION

KW - VALIDATION

KW - WHOQOL

KW - WORLD

KW - developing countries

KW - disabled persons

KW - spinal cord injury

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DO - 10.1080/09638288.2017.1294204

M3 - Article

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JO - Disability and Rehabilitation

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SN - 0963-8288

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ER -