Measuring emotional support in family networks: Adapting the family network method for individuals with a mild intellectual disability

S.A.H. Giesbers*, T. Tournier, A.H.C. Hendriks, R.P. Hasting, A. Jahoda, P.J.C.M. Embregts

*Corresponding author for this work

Research output: Contribution to journalArticleScientificpeer-review

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Abstract

Background:
Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support.
Method:
The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts.
Results:
By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM-ID can be analysed using social network analysis. Thereby, the FNM-ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability.
Conclusions:
The FNM-ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability.
Original languageEnglish
Pages (from-to)94-105
JournalJournal of Applied Research in Intellectual Disabilities
Volume32
Issue number1
DOIs
Publication statusPublished - 2019

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disability
network analysis
social network
experience

Keywords

  • CHILDREN
  • DEVELOPMENTAL-DISABILITIES
  • HEALTH
  • MEMBERS
  • MENTAL-RETARDATION
  • MOTHERS
  • PEOPLE
  • QUALITY
  • SOCIAL NETWORKS
  • STRESS

Cite this

@article{867a400dd25743d994887cf7c61c1aef,
title = "Measuring emotional support in family networks: Adapting the family network method for individuals with a mild intellectual disability",
abstract = "Background:Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support.Method:The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts.Results:By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM-ID can be analysed using social network analysis. Thereby, the FNM-ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability.Conclusions:The FNM-ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability.",
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author = "S.A.H. Giesbers and T. Tournier and A.H.C. Hendriks and R.P. Hasting and A. Jahoda and P.J.C.M. Embregts",
year = "2019",
doi = "10.1111/jar.12512",
language = "English",
volume = "32",
pages = "94--105",
journal = "Journal of Applied Research in Intellectual Disabilities",
issn = "1360-2322",
publisher = "Wiley-Blackwell",
number = "1",

}

Measuring emotional support in family networks : Adapting the family network method for individuals with a mild intellectual disability. / Giesbers, S.A.H.; Tournier, T.; Hendriks, A.H.C.; Hasting, R.P.; Jahoda, A.; Embregts, P.J.C.M.

In: Journal of Applied Research in Intellectual Disabilities, Vol. 32, No. 1, 2019, p. 94-105.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Measuring emotional support in family networks

T2 - Adapting the family network method for individuals with a mild intellectual disability

AU - Giesbers, S.A.H.

AU - Tournier, T.

AU - Hendriks, A.H.C.

AU - Hasting, R.P.

AU - Jahoda, A.

AU - Embregts, P.J.C.M.

PY - 2019

Y1 - 2019

N2 - Background:Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support.Method:The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts.Results:By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM-ID can be analysed using social network analysis. Thereby, the FNM-ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability.Conclusions:The FNM-ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability.

AB - Background:Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support.Method:The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts.Results:By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM-ID can be analysed using social network analysis. Thereby, the FNM-ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability.Conclusions:The FNM-ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability.

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KW - DEVELOPMENTAL-DISABILITIES

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KW - MEMBERS

KW - MENTAL-RETARDATION

KW - MOTHERS

KW - PEOPLE

KW - QUALITY

KW - SOCIAL NETWORKS

KW - STRESS

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