Measuring emotional support in family networks: Adapting the family network method for individuals with a mild intellectual disability

S.A.H. Giesbers*, T. Tournier, A.H.C. Hendriks, R.P. Hasting, A. Jahoda, P.J.C.M. Embregts

*Corresponding author for this work

Research output: Contribution to journalArticleScientificpeer-review

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Abstract

Background:
Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support.
Method:
The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts.
Results:
By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM-ID can be analysed using social network analysis. Thereby, the FNM-ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability.
Conclusions:
The FNM-ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability.
Original languageEnglish
Pages (from-to)94-105
JournalJournal of Applied Research in Intellectual Disabilities
Volume32
Issue number1
DOIs
Publication statusPublished - 2019

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Keywords

  • CHILDREN
  • DEVELOPMENTAL-DISABILITIES
  • HEALTH
  • MEMBERS
  • MENTAL-RETARDATION
  • MOTHERS
  • PEOPLE
  • QUALITY
  • SOCIAL NETWORKS
  • STRESS

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