TY - JOUR
T1 - Mind your data
T2 - Privacy and legal matters in eHealth
AU - Zegers, Catharina M L
AU - Witteveen, Annemieke
AU - Schulte, Mieke H J
AU - Henrich, Julia F
AU - Vermeij, Anouk
AU - Klever, Brigit
AU - Dekker, Andre
PY - 2021
Y1 - 2021
N2 - The health care sector can benefit considerably from developments in digital technology. Consequently, eHealth applications are rapidly increasing in number and sophistication. For successful development and implementation of eHealth, it is paramount to guarantee the privacy and safety of patients and their collected data. At the same time, anonymized data that are collected through eHealth could be used in the development of innovative and personalized diagnostic, prognostic, and treatment tools. To address the needs of researchers, health care providers, and eHealth developers for more information and practical tools to handle privacy and legal matters in eHealth, the Dutch national Digital Society Research Programme organized the "Mind Your Data: Privacy and Legal Matters in eHealth" conference. In this paper, we share the key take home messages from the conference based on the following five tradeoffs: (1) privacy versus independence, (2) informed consent versus convenience, (3) clinical research versus clinical routine data, (4) responsibility and standardization, and (5) privacy versus solidarity.
AB - The health care sector can benefit considerably from developments in digital technology. Consequently, eHealth applications are rapidly increasing in number and sophistication. For successful development and implementation of eHealth, it is paramount to guarantee the privacy and safety of patients and their collected data. At the same time, anonymized data that are collected through eHealth could be used in the development of innovative and personalized diagnostic, prognostic, and treatment tools. To address the needs of researchers, health care providers, and eHealth developers for more information and practical tools to handle privacy and legal matters in eHealth, the Dutch national Digital Society Research Programme organized the "Mind Your Data: Privacy and Legal Matters in eHealth" conference. In this paper, we share the key take home messages from the conference based on the following five tradeoffs: (1) privacy versus independence, (2) informed consent versus convenience, (3) clinical research versus clinical routine data, (4) responsibility and standardization, and (5) privacy versus solidarity.
KW - Data
KW - EHealth
KW - Privacy
UR - http://www.scopus.com/inward/record.url?scp=85103620195&partnerID=8YFLogxK
U2 - 10.2196/17456
DO - 10.2196/17456
M3 - Article
C2 - 33729163
SN - 2561-326X
VL - 5
JO - JMIR Formative Research
JF - JMIR Formative Research
IS - 3
M1 - e17456
ER -