Patient-centered outcomes on quality of life and anthroposophic healthcare

A qualitative triangulation study

E.B. Koster, Erik W Baars, D. Delnoij

Research output: Contribution to journalArticleScientificpeer-review

Abstract

Purpose
To provide a qualitative investigation of aspects that matter to patients regarding quality of life (QOL) and other perceived treatment effects of anthroposophic healthcare (AH). It is a first step in the development of patient reported outcome measures (PROMs) for AH. Hence, it will contribute to the evaluation of AH quality from patients’ perspectives.
Method
Within-method triangulation of four qualitative data sources is: (1) Survey of 2063 patients of AH general practitioners; single open item; (2) Survey of 34 patients of AH nurses; single open item; (3) and (4) Sixteen semi-structured interviews with patients. The data sources contained patients’ qualitative reports on contribution of treatment to QOL, other perceived treatment effects and/or quality of care aspects. Content analysis Construction of items and domains by open, axial and selective coding.
Results
Twelve domains regarding quality of life are found: Recovery/Symptom reduction, Active contribution/Autonomy, General well-being, Meaning, Rest/Relaxation, Functioning, Energy/Strength, Care relationship, Natural healing, Mindful inner attitude, Being well informed and Social relations. The interviews demonstrate relations between domains.
Conclusions
The findings give a comprehensive insight into aspects of care that are relevant to patients, providing a first step to develop PROMs for AH. Findings show a broadening of domains compared to existing measurement instruments and show close similarities with the recently developed concept of “positive health.” Extending QOL instruments with a broader set of domains would give concrete tools to improve evaluation of quality of care and make this evaluation more in line with aspects that matter to AH patients.
Keywords
Quality of life, Quality of care, Patient reported outcomes measures, Patient-centered care, Anthroposophic healthcare, Qualitative triangulation
Original languageEnglish
Pages (from-to)2257–2267
JournalQuality of Life Research
Volume25
Issue number9
DOIs
Publication statusPublished - 2016

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Delivery of Health Care
Information Storage and Retrieval
Interviews
General Practitioners
Nurses
Surveys and Questionnaires

Cite this

@article{a5b6d477f1474c22914e682e61563bb7,
title = "Patient-centered outcomes on quality of life and anthroposophic healthcare: A qualitative triangulation study",
abstract = "PurposeTo provide a qualitative investigation of aspects that matter to patients regarding quality of life (QOL) and other perceived treatment effects of anthroposophic healthcare (AH). It is a first step in the development of patient reported outcome measures (PROMs) for AH. Hence, it will contribute to the evaluation of AH quality from patients’ perspectives.MethodWithin-method triangulation of four qualitative data sources is: (1) Survey of 2063 patients of AH general practitioners; single open item; (2) Survey of 34 patients of AH nurses; single open item; (3) and (4) Sixteen semi-structured interviews with patients. The data sources contained patients’ qualitative reports on contribution of treatment to QOL, other perceived treatment effects and/or quality of care aspects. Content analysis Construction of items and domains by open, axial and selective coding.ResultsTwelve domains regarding quality of life are found: Recovery/Symptom reduction, Active contribution/Autonomy, General well-being, Meaning, Rest/Relaxation, Functioning, Energy/Strength, Care relationship, Natural healing, Mindful inner attitude, Being well informed and Social relations. The interviews demonstrate relations between domains.ConclusionsThe findings give a comprehensive insight into aspects of care that are relevant to patients, providing a first step to develop PROMs for AH. Findings show a broadening of domains compared to existing measurement instruments and show close similarities with the recently developed concept of “positive health.” Extending QOL instruments with a broader set of domains would give concrete tools to improve evaluation of quality of care and make this evaluation more in line with aspects that matter to AH patients.KeywordsQuality of life, Quality of care, Patient reported outcomes measures, Patient-centered care, Anthroposophic healthcare, Qualitative triangulation",
author = "E.B. Koster and Baars, {Erik W} and D. Delnoij",
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volume = "25",
pages = "2257–2267",
journal = "Quality of Life Research",
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Patient-centered outcomes on quality of life and anthroposophic healthcare : A qualitative triangulation study. / Koster, E.B.; Baars, Erik W; Delnoij, D.

In: Quality of Life Research, Vol. 25, No. 9, 2016, p. 2257–2267.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Patient-centered outcomes on quality of life and anthroposophic healthcare

T2 - A qualitative triangulation study

AU - Koster, E.B.

AU - Baars, Erik W

AU - Delnoij, D.

PY - 2016

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N2 - PurposeTo provide a qualitative investigation of aspects that matter to patients regarding quality of life (QOL) and other perceived treatment effects of anthroposophic healthcare (AH). It is a first step in the development of patient reported outcome measures (PROMs) for AH. Hence, it will contribute to the evaluation of AH quality from patients’ perspectives.MethodWithin-method triangulation of four qualitative data sources is: (1) Survey of 2063 patients of AH general practitioners; single open item; (2) Survey of 34 patients of AH nurses; single open item; (3) and (4) Sixteen semi-structured interviews with patients. The data sources contained patients’ qualitative reports on contribution of treatment to QOL, other perceived treatment effects and/or quality of care aspects. Content analysis Construction of items and domains by open, axial and selective coding.ResultsTwelve domains regarding quality of life are found: Recovery/Symptom reduction, Active contribution/Autonomy, General well-being, Meaning, Rest/Relaxation, Functioning, Energy/Strength, Care relationship, Natural healing, Mindful inner attitude, Being well informed and Social relations. The interviews demonstrate relations between domains.ConclusionsThe findings give a comprehensive insight into aspects of care that are relevant to patients, providing a first step to develop PROMs for AH. Findings show a broadening of domains compared to existing measurement instruments and show close similarities with the recently developed concept of “positive health.” Extending QOL instruments with a broader set of domains would give concrete tools to improve evaluation of quality of care and make this evaluation more in line with aspects that matter to AH patients.KeywordsQuality of life, Quality of care, Patient reported outcomes measures, Patient-centered care, Anthroposophic healthcare, Qualitative triangulation

AB - PurposeTo provide a qualitative investigation of aspects that matter to patients regarding quality of life (QOL) and other perceived treatment effects of anthroposophic healthcare (AH). It is a first step in the development of patient reported outcome measures (PROMs) for AH. Hence, it will contribute to the evaluation of AH quality from patients’ perspectives.MethodWithin-method triangulation of four qualitative data sources is: (1) Survey of 2063 patients of AH general practitioners; single open item; (2) Survey of 34 patients of AH nurses; single open item; (3) and (4) Sixteen semi-structured interviews with patients. The data sources contained patients’ qualitative reports on contribution of treatment to QOL, other perceived treatment effects and/or quality of care aspects. Content analysis Construction of items and domains by open, axial and selective coding.ResultsTwelve domains regarding quality of life are found: Recovery/Symptom reduction, Active contribution/Autonomy, General well-being, Meaning, Rest/Relaxation, Functioning, Energy/Strength, Care relationship, Natural healing, Mindful inner attitude, Being well informed and Social relations. The interviews demonstrate relations between domains.ConclusionsThe findings give a comprehensive insight into aspects of care that are relevant to patients, providing a first step to develop PROMs for AH. Findings show a broadening of domains compared to existing measurement instruments and show close similarities with the recently developed concept of “positive health.” Extending QOL instruments with a broader set of domains would give concrete tools to improve evaluation of quality of care and make this evaluation more in line with aspects that matter to AH patients.KeywordsQuality of life, Quality of care, Patient reported outcomes measures, Patient-centered care, Anthroposophic healthcare, Qualitative triangulation

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DO - 10.1007/s11136-016-1276-8

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SP - 2257

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JO - Quality of Life Research

JF - Quality of Life Research

SN - 0962-9343

IS - 9

ER -