Patient perspectives in sarcoidosis

Sanne J van Helmondt*, Louis B Polish, Marc A Judson, Jan C Grutters

*Corresponding author for this work

Research output: Contribution to journalReview articleScientificpeer-review

Abstract

Purpose of review: 

The review presents an overview of the scientific publications about patient perspectives in sarcoidosis.

Recent findings: 

The literature on patient perspectives in sarcoidosis is limited. Patient perspectives in sarcoidosis encompass a myriad of topics that have been addressed to some degree in the literature: patient needs and perceptions, patient-reported burden of sarcoidosis, and patient treatment priorities. Similar findings across studies were high levels of reported fatigue, a need to incorporate psychological support into the treatment plan and easy access to sarcoidosis expert centers. Furthermore, largely similar results were found across countries.

Summary: 

There is a growing focus in patient perspectives in terms of sarcoidosis treatment. A multidisciplinary approach including psychological support and attention to fatigue, may better reflect the needs of sarcoidosis patients. Further research on sarcoidosis patient perspectives in sarcoidosis is needed to optimize care.

Original languageEnglish
Pages (from-to)478-483
JournalCurrent Opinion in Pulmonary Medicine
Volume25
Issue number5
DOIs
Publication statusPublished - 2019

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Keywords

  • BURDEN
  • FATIGUE
  • QUALITY-OF-LIFE
  • VARIABILITY
  • patient perspectives
  • patient-reported outcomes
  • quality of life
  • sarcoidosis

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