Abstract
Purpose of review:
The review presents an overview of the scientific publications about patient perspectives in sarcoidosis.
Recent findings:
The literature on patient perspectives in sarcoidosis is limited. Patient perspectives in sarcoidosis encompass a myriad of topics that have been addressed to some degree in the literature: patient needs and perceptions, patient-reported burden of sarcoidosis, and patient treatment priorities. Similar findings across studies were high levels of reported fatigue, a need to incorporate psychological support into the treatment plan and easy access to sarcoidosis expert centers. Furthermore, largely similar results were found across countries.
Summary:
There is a growing focus in patient perspectives in terms of sarcoidosis treatment. A multidisciplinary approach including psychological support and attention to fatigue, may better reflect the needs of sarcoidosis patients. Further research on sarcoidosis patient perspectives in sarcoidosis is needed to optimize care.
| Original language | English |
|---|---|
| Pages (from-to) | 478-483 |
| Journal | Current Opinion in Pulmonary Medicine |
| Volume | 25 |
| Issue number | 5 |
| DOIs | |
| Publication status | Published - 2019 |
Keywords
- BURDEN
- FATIGUE
- QUALITY-OF-LIFE
- VARIABILITY
- patient perspectives
- patient-reported outcomes
- quality of life
- sarcoidosis
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