Perceived health is partially associated with the symptomatological profile in patients with benign and severe conditions

The case of congenital heart disease

D. Schoormans, M.A.G. Sprangers, W. Budts, B.J. Mulder, S. Apers, P. Moons

Research output: Contribution to journalArticleScientificpeer-review

Abstract

Purpose
Individuals with serious medical conditions can perceive their health status as good. This might be explained by the symptomatology inherent to the condition. Research in this respect is scarce. Congenital heart disease (CHD) is a spectrum of mild, moderate, and complex heart defects, representing more benign and severe chronic conditions. We investigated (1) symptomatology (i.e., symptom frequency and symptom distress) of CHD patients; (2) the extent to which symptomatology was independently related to perceived health; and (3) the relative importance of individual symptoms for perceived health.
Methods
A secondary data analysis on two separate patient samples (629 Belgian and 1,109 Dutch patients) was conducted. Patients’ symptomatology was measured with the TAAQOL–CHD. Perceived health was measured by the EQ-5Dvas in Belgian patients, and by a single item (EVGFP rating) of the SF-36 in Dutch patients. Linear regression analyses were performed to investigate the relationship between symptoms and perceived health, while controlling for sex, age, disease complexity, and functional status.
Results
The most frequently occurring symptoms were dizziness, palpitations, and nycturia. Symptom distress was associated with perceived health, independent of confounders. Symptom distress with respect to shortness of breath while walking; palpitations; and dizziness were independently related to perceived health.
Conclusions
Perceived health in CHD patients is partially associated with their symptomatology. This finding underscores the possibility that differences in perceived health across patient groups with more benign and severe conditions may be caused by the different impact conditions have—in terms of symptoms—on the day-to-day life.
Keywords: Perceived health status, Symptom frequency, Symptom distress, Congenital heart disease
Original languageEnglish
Pages (from-to)1295-1304
JournalQuality of Life Research
Volume22
Issue number6
DOIs
Publication statusPublished - 2013

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Dizziness
Nocturia
Linear Models

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@article{9a69b20fe81f4767b67a37b1039eb51e,
title = "Perceived health is partially associated with the symptomatological profile in patients with benign and severe conditions: The case of congenital heart disease",
abstract = "PurposeIndividuals with serious medical conditions can perceive their health status as good. This might be explained by the symptomatology inherent to the condition. Research in this respect is scarce. Congenital heart disease (CHD) is a spectrum of mild, moderate, and complex heart defects, representing more benign and severe chronic conditions. We investigated (1) symptomatology (i.e., symptom frequency and symptom distress) of CHD patients; (2) the extent to which symptomatology was independently related to perceived health; and (3) the relative importance of individual symptoms for perceived health.MethodsA secondary data analysis on two separate patient samples (629 Belgian and 1,109 Dutch patients) was conducted. Patients’ symptomatology was measured with the TAAQOL–CHD. Perceived health was measured by the EQ-5Dvas in Belgian patients, and by a single item (EVGFP rating) of the SF-36 in Dutch patients. Linear regression analyses were performed to investigate the relationship between symptoms and perceived health, while controlling for sex, age, disease complexity, and functional status.ResultsThe most frequently occurring symptoms were dizziness, palpitations, and nycturia. Symptom distress was associated with perceived health, independent of confounders. Symptom distress with respect to shortness of breath while walking; palpitations; and dizziness were independently related to perceived health.ConclusionsPerceived health in CHD patients is partially associated with their symptomatology. This finding underscores the possibility that differences in perceived health across patient groups with more benign and severe conditions may be caused by the different impact conditions have—in terms of symptoms—on the day-to-day life.Keywords: Perceived health status, Symptom frequency, Symptom distress, Congenital heart disease",
author = "D. Schoormans and M.A.G. Sprangers and W. Budts and B.J. Mulder and S. Apers and P. Moons",
year = "2013",
doi = "10.1007/s11136-012-0241-4",
language = "English",
volume = "22",
pages = "1295--1304",
journal = "Quality of Life Research",
issn = "0962-9343",
publisher = "Springer",
number = "6",

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Perceived health is partially associated with the symptomatological profile in patients with benign and severe conditions : The case of congenital heart disease. / Schoormans, D.; Sprangers, M.A.G.; Budts, W.; Mulder, B.J.; Apers, S.; Moons, P.

In: Quality of Life Research, Vol. 22, No. 6, 2013, p. 1295-1304.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Perceived health is partially associated with the symptomatological profile in patients with benign and severe conditions

T2 - The case of congenital heart disease

AU - Schoormans, D.

AU - Sprangers, M.A.G.

AU - Budts, W.

AU - Mulder, B.J.

AU - Apers, S.

AU - Moons, P.

PY - 2013

Y1 - 2013

N2 - PurposeIndividuals with serious medical conditions can perceive their health status as good. This might be explained by the symptomatology inherent to the condition. Research in this respect is scarce. Congenital heart disease (CHD) is a spectrum of mild, moderate, and complex heart defects, representing more benign and severe chronic conditions. We investigated (1) symptomatology (i.e., symptom frequency and symptom distress) of CHD patients; (2) the extent to which symptomatology was independently related to perceived health; and (3) the relative importance of individual symptoms for perceived health.MethodsA secondary data analysis on two separate patient samples (629 Belgian and 1,109 Dutch patients) was conducted. Patients’ symptomatology was measured with the TAAQOL–CHD. Perceived health was measured by the EQ-5Dvas in Belgian patients, and by a single item (EVGFP rating) of the SF-36 in Dutch patients. Linear regression analyses were performed to investigate the relationship between symptoms and perceived health, while controlling for sex, age, disease complexity, and functional status.ResultsThe most frequently occurring symptoms were dizziness, palpitations, and nycturia. Symptom distress was associated with perceived health, independent of confounders. Symptom distress with respect to shortness of breath while walking; palpitations; and dizziness were independently related to perceived health.ConclusionsPerceived health in CHD patients is partially associated with their symptomatology. This finding underscores the possibility that differences in perceived health across patient groups with more benign and severe conditions may be caused by the different impact conditions have—in terms of symptoms—on the day-to-day life.Keywords: Perceived health status, Symptom frequency, Symptom distress, Congenital heart disease

AB - PurposeIndividuals with serious medical conditions can perceive their health status as good. This might be explained by the symptomatology inherent to the condition. Research in this respect is scarce. Congenital heart disease (CHD) is a spectrum of mild, moderate, and complex heart defects, representing more benign and severe chronic conditions. We investigated (1) symptomatology (i.e., symptom frequency and symptom distress) of CHD patients; (2) the extent to which symptomatology was independently related to perceived health; and (3) the relative importance of individual symptoms for perceived health.MethodsA secondary data analysis on two separate patient samples (629 Belgian and 1,109 Dutch patients) was conducted. Patients’ symptomatology was measured with the TAAQOL–CHD. Perceived health was measured by the EQ-5Dvas in Belgian patients, and by a single item (EVGFP rating) of the SF-36 in Dutch patients. Linear regression analyses were performed to investigate the relationship between symptoms and perceived health, while controlling for sex, age, disease complexity, and functional status.ResultsThe most frequently occurring symptoms were dizziness, palpitations, and nycturia. Symptom distress was associated with perceived health, independent of confounders. Symptom distress with respect to shortness of breath while walking; palpitations; and dizziness were independently related to perceived health.ConclusionsPerceived health in CHD patients is partially associated with their symptomatology. This finding underscores the possibility that differences in perceived health across patient groups with more benign and severe conditions may be caused by the different impact conditions have—in terms of symptoms—on the day-to-day life.Keywords: Perceived health status, Symptom frequency, Symptom distress, Congenital heart disease

U2 - 10.1007/s11136-012-0241-4

DO - 10.1007/s11136-012-0241-4

M3 - Article

VL - 22

SP - 1295

EP - 1304

JO - Quality of Life Research

JF - Quality of Life Research

SN - 0962-9343

IS - 6

ER -