Population based cancer survivorship research: Experiences from Germany and the Netherlands

M.S.Y. Thong, F. Mols, Daniela Doege, L.V. van de Poll-Franse, V. Arndt

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Abstract

Research into the well-being of cancer survivors in the post-treatment phase can face the potential challenge of identifying and recruiting survivors. Population-based cancer registries can address this challenge. Through linkage with national and state cancer registries, Germany and the Netherlands have a long history of conducting population-based survivorship studies. The CAESAR study from Germany and the PROFILES registry from the Netherlands are examples of large and comprehensive population-based survivorship studies assessing the wellbeing of (long-term) cancer survivors. This paper briefly describes the contributions studies such as CAESAR and PROFILES have made to cancer survivorship research at the patient, clinical, research, and societal level.
Potential barriers associated with population-based survivorship research and directions are also discussed.
Original languageEnglish
Pages (from-to)87-91
JournalJournal of Cancer Policy
Volume15
Issue numberpart B
DOIs
Publication statusPublished - 2018

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Netherlands
Germany
Survival Rate
Survivors
Neoplasms

Keywords

  • BREAST-CANCER
  • COLORECTAL-CANCER
  • Cancer registry
  • Cancer survivors
  • INITIAL TREATMENT
  • LONG-TERM EVALUATION
  • LYMPHOMA SURVIVORS
  • NORMATIVE POPULATION
  • PATIENT-REPORTED OUTCOMES
  • PERIPHERAL NEUROPATHY
  • PROFILES REGISTRY
  • Patient-reported outcomes
  • Population-based
  • QUALITY-OF-LIFE

Cite this

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title = "Population based cancer survivorship research:: Experiences from Germany and the Netherlands",
abstract = "Research into the well-being of cancer survivors in the post-treatment phase can face the potential challenge of identifying and recruiting survivors. Population-based cancer registries can address this challenge. Through linkage with national and state cancer registries, Germany and the Netherlands have a long history of conducting population-based survivorship studies. The CAESAR study from Germany and the PROFILES registry from the Netherlands are examples of large and comprehensive population-based survivorship studies assessing the wellbeing of (long-term) cancer survivors. This paper briefly describes the contributions studies such as CAESAR and PROFILES have made to cancer survivorship research at the patient, clinical, research, and societal level.Potential barriers associated with population-based survivorship research and directions are also discussed.",
keywords = "BREAST-CANCER, COLORECTAL-CANCER, Cancer registry, Cancer survivors, INITIAL TREATMENT, LONG-TERM EVALUATION, LYMPHOMA SURVIVORS, NORMATIVE POPULATION, PATIENT-REPORTED OUTCOMES, PERIPHERAL NEUROPATHY, PROFILES REGISTRY, Patient-reported outcomes, Population-based, QUALITY-OF-LIFE",
author = "M.S.Y. Thong and F. Mols and Daniela Doege and {van de Poll-Franse}, L.V. and V. Arndt",
year = "2018",
doi = "10.1016/j.jcpo.2018.02.003",
language = "English",
volume = "15",
pages = "87--91",
journal = "Journal of Cancer Policy",
issn = "2213-5383",
publisher = "Elsevier BV",
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Population based cancer survivorship research: Experiences from Germany and the Netherlands. / Thong, M.S.Y.; Mols, F.; Doege, Daniela; van de Poll-Franse, L.V.; Arndt, V.

In: Journal of Cancer Policy, Vol. 15, No. part B, 2018, p. 87-91.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Population based cancer survivorship research:

T2 - Experiences from Germany and the Netherlands

AU - Thong, M.S.Y.

AU - Mols, F.

AU - Doege, Daniela

AU - van de Poll-Franse, L.V.

AU - Arndt, V.

PY - 2018

Y1 - 2018

N2 - Research into the well-being of cancer survivors in the post-treatment phase can face the potential challenge of identifying and recruiting survivors. Population-based cancer registries can address this challenge. Through linkage with national and state cancer registries, Germany and the Netherlands have a long history of conducting population-based survivorship studies. The CAESAR study from Germany and the PROFILES registry from the Netherlands are examples of large and comprehensive population-based survivorship studies assessing the wellbeing of (long-term) cancer survivors. This paper briefly describes the contributions studies such as CAESAR and PROFILES have made to cancer survivorship research at the patient, clinical, research, and societal level.Potential barriers associated with population-based survivorship research and directions are also discussed.

AB - Research into the well-being of cancer survivors in the post-treatment phase can face the potential challenge of identifying and recruiting survivors. Population-based cancer registries can address this challenge. Through linkage with national and state cancer registries, Germany and the Netherlands have a long history of conducting population-based survivorship studies. The CAESAR study from Germany and the PROFILES registry from the Netherlands are examples of large and comprehensive population-based survivorship studies assessing the wellbeing of (long-term) cancer survivors. This paper briefly describes the contributions studies such as CAESAR and PROFILES have made to cancer survivorship research at the patient, clinical, research, and societal level.Potential barriers associated with population-based survivorship research and directions are also discussed.

KW - BREAST-CANCER

KW - COLORECTAL-CANCER

KW - Cancer registry

KW - Cancer survivors

KW - INITIAL TREATMENT

KW - LONG-TERM EVALUATION

KW - LYMPHOMA SURVIVORS

KW - NORMATIVE POPULATION

KW - PATIENT-REPORTED OUTCOMES

KW - PERIPHERAL NEUROPATHY

KW - PROFILES REGISTRY

KW - Patient-reported outcomes

KW - Population-based

KW - QUALITY-OF-LIFE

U2 - 10.1016/j.jcpo.2018.02.003

DO - 10.1016/j.jcpo.2018.02.003

M3 - Article

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SP - 87

EP - 91

JO - Journal of Cancer Policy

JF - Journal of Cancer Policy

SN - 2213-5383

IS - part B

ER -