Population based cancer survivorship research:: Experiences from Germany and the Netherlands

M.S.Y. Thong; F. Mols; Daniela Doege; L.V. van de Poll-Franse; V. Arndt

doi:10.1016/j.jcpo.2018.02.003

Population based cancer survivorship research: Experiences from Germany and the Netherlands

M.S.Y. Thong
, F. Mols
, Daniela Doege
, L.V. van de Poll-Franse
, V. Arndt

Medical and Clinical Psychology

Research output: Contribution to journal › Article › Scientific › peer-review

10 Citations (Scopus)

238 Downloads (Pure)

Abstract

Research into the well-being of cancer survivors in the post-treatment phase can face the potential challenge of identifying and recruiting survivors. Population-based cancer registries can address this challenge. Through linkage with national and state cancer registries, Germany and the Netherlands have a long history of conducting population-based survivorship studies. The CAESAR study from Germany and the PROFILES registry from the Netherlands are examples of large and comprehensive population-based survivorship studies assessing the wellbeing of (long-term) cancer survivors. This paper briefly describes the contributions studies such as CAESAR and PROFILES have made to cancer survivorship research at the patient, clinical, research, and societal level.
Potential barriers associated with population-based survivorship research and directions are also discussed.

Original language	English
Pages (from-to)	87-91
Journal	Journal of Cancer Policy
Volume	15
Issue number	part B
DOIs	https://doi.org/10.1016/j.jcpo.2018.02.003
Publication status	Published - 2018

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

BREAST-CANCER
COLORECTAL-CANCER
Cancer registry
Cancer survivors
INITIAL TREATMENT
LONG-TERM EVALUATION
LYMPHOMA SURVIVORS
NORMATIVE POPULATION
PATIENT-REPORTED OUTCOMES
PERIPHERAL NEUROPATHY
PROFILES REGISTRY
Patient-reported outcomes
Population-based
QUALITY-OF-LIFE

Access to Document

10.1016/j.jcpo.2018.02.003

Mols - Population-based cancer survivorship researchFinal published version, 318 KBLicence: Taverne

Cite this

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title = "Population based cancer survivorship research:: Experiences from Germany and the Netherlands",

abstract = "Research into the well-being of cancer survivors in the post-treatment phase can face the potential challenge of identifying and recruiting survivors. Population-based cancer registries can address this challenge. Through linkage with national and state cancer registries, Germany and the Netherlands have a long history of conducting population-based survivorship studies. The CAESAR study from Germany and the PROFILES registry from the Netherlands are examples of large and comprehensive population-based survivorship studies assessing the wellbeing of (long-term) cancer survivors. This paper briefly describes the contributions studies such as CAESAR and PROFILES have made to cancer survivorship research at the patient, clinical, research, and societal level. Potential barriers associated with population-based survivorship research and directions are also discussed.",

keywords = "BREAST-CANCER, COLORECTAL-CANCER, Cancer registry, Cancer survivors, INITIAL TREATMENT, LONG-TERM EVALUATION, LYMPHOMA SURVIVORS, NORMATIVE POPULATION, PATIENT-REPORTED OUTCOMES, PERIPHERAL NEUROPATHY, PROFILES REGISTRY, Patient-reported outcomes, Population-based, QUALITY-OF-LIFE",

author = "M.S.Y. Thong and F. Mols and Daniela Doege and \{van de Poll-Franse\}, L.V. and V. Arndt",

year = "2018",

doi = "10.1016/j.jcpo.2018.02.003",

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pages = "87--91",

journal = "Journal of Cancer Policy",

issn = "2213-5383",

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TY - JOUR

T1 - Population based cancer survivorship research:

T2 - Experiences from Germany and the Netherlands

AU - Thong, M.S.Y.

AU - Mols, F.

AU - Doege, Daniela

AU - van de Poll-Franse, L.V.

AU - Arndt, V.

PY - 2018

Y1 - 2018

N2 - Research into the well-being of cancer survivors in the post-treatment phase can face the potential challenge of identifying and recruiting survivors. Population-based cancer registries can address this challenge. Through linkage with national and state cancer registries, Germany and the Netherlands have a long history of conducting population-based survivorship studies. The CAESAR study from Germany and the PROFILES registry from the Netherlands are examples of large and comprehensive population-based survivorship studies assessing the wellbeing of (long-term) cancer survivors. This paper briefly describes the contributions studies such as CAESAR and PROFILES have made to cancer survivorship research at the patient, clinical, research, and societal level. Potential barriers associated with population-based survivorship research and directions are also discussed.

AB - Research into the well-being of cancer survivors in the post-treatment phase can face the potential challenge of identifying and recruiting survivors. Population-based cancer registries can address this challenge. Through linkage with national and state cancer registries, Germany and the Netherlands have a long history of conducting population-based survivorship studies. The CAESAR study from Germany and the PROFILES registry from the Netherlands are examples of large and comprehensive population-based survivorship studies assessing the wellbeing of (long-term) cancer survivors. This paper briefly describes the contributions studies such as CAESAR and PROFILES have made to cancer survivorship research at the patient, clinical, research, and societal level. Potential barriers associated with population-based survivorship research and directions are also discussed.

KW - BREAST-CANCER

KW - COLORECTAL-CANCER

KW - Cancer registry

KW - Cancer survivors

KW - INITIAL TREATMENT

KW - LONG-TERM EVALUATION

KW - LYMPHOMA SURVIVORS

KW - NORMATIVE POPULATION

KW - PATIENT-REPORTED OUTCOMES

KW - PERIPHERAL NEUROPATHY

KW - PROFILES REGISTRY

KW - Patient-reported outcomes

KW - Population-based

KW - QUALITY-OF-LIFE

U2 - 10.1016/j.jcpo.2018.02.003

DO - 10.1016/j.jcpo.2018.02.003

M3 - Article

SN - 2213-5383

VL - 15

SP - 87

EP - 91

JO - Journal of Cancer Policy

JF - Journal of Cancer Policy

IS - part B

ER -