Prostate cancer survivors with a passive role preference in treatment decision-making are less satisfied with information received: Results from the PROFILES Registry

M. Cuypers, R.E.D. Lamers, Marieke de Vries, Olga Husson, P.J.M. Kil, L.V. van de Poll-Franse

Research output: Contribution to journalArticleScientificpeer-review

8 Citations (Scopus)

Abstract

Objective
To investigate decision-making role preferences and their association with the evaluation of information received in a sample of low-risk and intermediate-risk prostate cancer (Pca) survivors.
Methods
Cross-sectional study involved 562 men diagnosed with low-risk or intermediate-risk Pca (median time since diagnosis, 48 mo), measuring preferred decision-making role (Control Preference Scale) and the evaluation of information received (EORTC QLQ-INFO25). Analyses were performed using analysis of variance, chi-square tests, and multivariable linear regression models.
Results
Men who preferred a passive role were older and less educated than other preference groups and more often selected a noninvasive treatment option (all with P<0.001). The passive role preference group reported having received less information, judged the received information as less helpful, and indicated lower overall satisfaction with information received (all with P<0.05). Role preference groups did not differ in their desire to receive more information.
Conclusion
Compared with nonpassive preference groups, the preference for a passive role in Pca treatment decision-making is associated with less satisfaction with the information received.Practice implicationsAssessment of role preferences and tailored information provision could improve satisfaction with information received and perhaps may ultimately lead to improved patient participation in treatment decision-making.KeywordsProstate cancer, Patient participation, Shared decision-making, Decision-making roles, Preferences, Information provision
Original languageEnglish
Pages (from-to)482.e11–482.e18
JournalUrologic Oncology: Seminars and Original Investigations
Volume34
Issue number11
DOIs
Publication statusPublished - 2 Nov 2016

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