Secondary use of health data in the EHDS: Public interest and the role of HDABs

Tjaša Petročnik

doi:10.4324/9781003544111-12

Secondary use of health data in the EHDS: Public interest and the role of HDABs

Tjaša Petročnik^*

^*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceeding › Chapter › Scientific › peer-review

Abstract

This chapter critically analyses the role of HDABs as the entity occupying the key position in facilitating and managing health data sharing for secondary use in the EHDS. In particular, the chapter focuses on the transformations of the regime for health data access and re-use and scrutinises the role of the HDABs in relation to the public interest aspirations of the EHDS. The analysis demonstrates that HDABs might face challenges when navigating the expectations of the interested public(s). Hence, the chapter suggests proactively devising HDABs as health data custodians, directing their loyalty towards the interests of the individuals and the society as a whole.

Original language	English
Title of host publication	The European health data space
Subtitle of host publication	Examining a new era in data protection
Editors	Santa Slokenberga, Katharina Ó Cathaoir, Mahsa Shabani
Place of Publication	Oxon
Publisher	Routledge
Chapter	9
Pages	181-206
Number of pages	26
ISBN (Electronic)	9781003544111
ISBN (Print)	9781032822884, 9781032896847
DOIs	https://doi.org/10.4324/9781003544111-12
Publication status	Published - 2025

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10.4324/9781003544111-12

Digital Legal Studies: From regulating human behavior to regulating data
Graef, I. (Principal Investigator), van der Sloot, B. (Principal Investigator), Kamara, I. (Principal Investigator), Kosta, E. (Researcher), Monti, G. (Researcher), Leenes, R. (Researcher), Taylor, L. (Researcher), Bex, F. (Researcher), Keymolen, E. (Researcher), Broer, T. (Researcher), Prüfer, J. (Researcher), Petročnik, T. (AIO), Hriscu, A.-M. (AIO), Lim, C. (AIO), Taimur, A. (AIO), Khaleghi, K. (AIO), Kuru, T. (AIO), Roussos, M. (AIO), de Groot, A. (Researcher), de Souza, S. (Researcher), Degalahal, S. R. (AIO), Baumgart, M. (Researcher), Noorman, M. (Researcher) & Bostoen, F. (Researcher)
1/08/19 → 31/12/29
Project: Research project

Cite this

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title = "Secondary use of health data in the EHDS: Public interest and the role of HDABs",

abstract = "This chapter critically analyses the role of HDABs as the entity occupying the key position in facilitating and managing health data sharing for secondary use in the EHDS. In particular, the chapter focuses on the transformations of the regime for health data access and re-use and scrutinises the role of the HDABs in relation to the public interest aspirations of the EHDS. The analysis demonstrates that HDABs might face challenges when navigating the expectations of the interested public(s). Hence, the chapter suggests proactively devising HDABs as health data custodians, directing their loyalty towards the interests of the individuals and the society as a whole.",

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pages = "181--206",

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Secondary use of health data in the EHDS: Public interest and the role of HDABs. / Petročnik, Tjaša.
The European health data space: Examining a new era in data protection. ed. / Santa Slokenberga; Katharina Ó Cathaoir; Mahsa Shabani. Oxon: Routledge, 2025. p. 181-206.

Research output: Chapter in Book/Report/Conference proceeding › Chapter › Scientific › peer-review

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Secondary use of health data in the EHDS: Public interest and the role of HDABs

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Digital Legal Studies: From regulating human behavior to regulating data

Cite this