Abstract
The field of health data management poses unique challenges in relation to data ownership, the privacy of data subjects, and the reusability of data. The FAIR Guidelines have been developed to address these challenges. The Virus Outbreak Data Network (VODAN) architecture builds on these principles, using the European Union's General Data Protection Regulation (GDPR) framework to ensure compliance with local data regulations, while using information knowledge management concepts to further improve data provenance and interoperability. In this article we provide an overview of the terminology used in the field of FAIR data management, with a specific focus on FAIR compliant health information management, as implemented in the VODAN architecture.
Original language | English |
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Pages (from-to) | 698-723 |
Number of pages | 26 |
Journal | Data Intelligence |
Volume | 4 |
Issue number | 4 |
DOIs | |
Publication status | Published - 1 Oct 2022 |
Keywords
- Data management
- Distributed data
- Federated data
- Data governance
- FAIR Guidelines
- FAIR Data and Services
- FAIR Data Point
- FAIR framework
- BIG DATA
- CHALLENGES