The experiences of parents arranging the move of their young adult offspring with intellectual disabilities to 24-hour residential settings: A continuing puzzle

F.R. Vereijken; S.A.H. Giesbers; A. Jahoda; P.C.J.M. Embregts

doi:10.3109/13668250.2023.2254942

The experiences of parents arranging the move of their young adult offspring with intellectual disabilities to 24-hour residential settings: A continuing puzzle

F.R. Vereijken^*
, S.A.H. Giesbers
, A. Jahoda
, P.C.J.M. Embregts

^*Corresponding author for this work

Research output: Contribution to journal › Article › Scientific › peer-review

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Abstract

Background
Moving out of the family home is a key transition for people with intellectual disabilities and their families. Yet there has been little research about parents’ experiences of planning the move of their young adult offspring to residential settings offering 24-hour support.

Method
Interviews were conducted with eleven parents whose offspring moved to residential settings within the past 5 years (five fathers; six mothers). They consisted of structured questions about planning their offsprings’ moves and semi-structured questions about parents’ experiences.

Results
Content analysis of the structured questions revealed reasons parents began thinking about the moves and routes to finding information. The thematic analysis highlighted the emotional challenges parents faced.

Conclusions
The findings highlight the need to address this neglected topic and ensure that practical and emotional support is put in place to plan positive futures, rather than relying on families to use their own initiative or waiting until a crisis occurs.

Original language	English
Number of pages	14
Journal	Journal of Intellectual and Developmental Disability
DOIs	https://doi.org/10.3109/13668250.2023.2254942
Publication status	Published - 2023

Keywords

intellectual disability
parents
move out of family home
transition
residential support settings

Access to Document

10.3109/13668250.2023.2254942Licence: CC BY-NC-ND

Tranzo_Vereijken_ParentsExperienceMovingIntellectualDisabilities_JIDD_2023Final published version, 1.72 MBLicence: CC BY-NC-ND

Ervaringen van ouders met het uit huis gaan van hun kinderen met een verstandelijke beperking
Vereijken, F. R., Giesbers, S. A. H., Jahoda, A. & Embregts, P. J. C. M., 2024, 2 p. Tilburg University.
Research output: Other contribution

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Ervaringen van ouders met het uit huis gaan van hun kind met een verstandelijke beperking: ‘Wat ons enorm heeft geholpen is heel veel contact met begeleiders’
Vereijken, F., Giesbers, S., Jahoda, A. & Embregts, P., 2024, 3 p. Tilburg University.
Research output: Other contribution

Open Access
File

Cite this

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title = "The experiences of parents arranging the move of their young adult offspring with intellectual disabilities to 24-hour residential settings: A continuing puzzle",

abstract = "Background Moving out of the family home is a key transition for people with intellectual disabilities and their families. Yet there has been little research about parents{\textquoteright} experiences of planning the move of their young adult offspring to residential settings offering 24-hour support. Method Interviews were conducted with eleven parents whose offspring moved to residential settings within the past 5 years (five fathers; six mothers). They consisted of structured questions about planning their offsprings{\textquoteright} moves and semi-structured questions about parents{\textquoteright} experiences. Results Content analysis of the structured questions revealed reasons parents began thinking about the moves and routes to finding information. The thematic analysis highlighted the emotional challenges parents faced. Conclusions The findings highlight the need to address this neglected topic and ensure that practical and emotional support is put in place to plan positive futures, rather than relying on families to use their own initiative or waiting until a crisis occurs.",

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author = "F.R. Vereijken and S.A.H. Giesbers and A. Jahoda and P.C.J.M. Embregts",

year = "2023",

doi = "10.3109/13668250.2023.2254942",

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journal = "Journal of Intellectual and Developmental Disability",

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T1 - The experiences of parents arranging the move of their young adult offspring with intellectual disabilities to 24-hour residential settings

T2 - A continuing puzzle

AU - Vereijken, F.R.

AU - Giesbers, S.A.H.

AU - Jahoda, A.

AU - Embregts, P.C.J.M.

PY - 2023

Y1 - 2023

N2 - Background Moving out of the family home is a key transition for people with intellectual disabilities and their families. Yet there has been little research about parents’ experiences of planning the move of their young adult offspring to residential settings offering 24-hour support. Method Interviews were conducted with eleven parents whose offspring moved to residential settings within the past 5 years (five fathers; six mothers). They consisted of structured questions about planning their offsprings’ moves and semi-structured questions about parents’ experiences. Results Content analysis of the structured questions revealed reasons parents began thinking about the moves and routes to finding information. The thematic analysis highlighted the emotional challenges parents faced. Conclusions The findings highlight the need to address this neglected topic and ensure that practical and emotional support is put in place to plan positive futures, rather than relying on families to use their own initiative or waiting until a crisis occurs.

AB - Background Moving out of the family home is a key transition for people with intellectual disabilities and their families. Yet there has been little research about parents’ experiences of planning the move of their young adult offspring to residential settings offering 24-hour support. Method Interviews were conducted with eleven parents whose offspring moved to residential settings within the past 5 years (five fathers; six mothers). They consisted of structured questions about planning their offsprings’ moves and semi-structured questions about parents’ experiences. Results Content analysis of the structured questions revealed reasons parents began thinking about the moves and routes to finding information. The thematic analysis highlighted the emotional challenges parents faced. Conclusions The findings highlight the need to address this neglected topic and ensure that practical and emotional support is put in place to plan positive futures, rather than relying on families to use their own initiative or waiting until a crisis occurs.

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KW - parents

KW - move out of family home

KW - transition

KW - residential support settings

U2 - 10.3109/13668250.2023.2254942

DO - 10.3109/13668250.2023.2254942

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JO - Journal of Intellectual and Developmental Disability

JF - Journal of Intellectual and Developmental Disability

ER -

The experiences of parents arranging the move of their young adult offspring with intellectual disabilities to 24-hour residential settings: A continuing puzzle

Abstract

Keywords

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Research output

Ervaringen van ouders met het uit huis gaan van hun kinderen met een verstandelijke beperking

Ervaringen van ouders met het uit huis gaan van hun kind met een verstandelijke beperking: ‘Wat ons enorm heeft geholpen is heel veel contact met begeleiders’

Cite this