The international phase 4 validation study of the EORTC QLQ-SWB32: A stand-alone measure of spiritual well-being for people receiving palliative care for cancer

B. Vivat, T. E. Young, J. Winstanley, J. I. Arraras, K. Black, F. Boyle, A. Bredart, A. Costantini, J. Guo, M. E. Irarrazaval, K. Kobayashi, R. Kruizinga, M. Navarro, S. Omidvari, G. E. Rohde, S. Serpentini, N. Spry, H. W.M. Van Laarhoven, G. M. Yang

Research output: Contribution to journalArticleScientificpeer-review

Abstract

The EORTC Quality of Life Group has just completed the final phase (field‐testing and validation) of an international project to develop a stand‐alone measure of spiritual well‐being (SWB) for palliative cancer patients. Participants (n = 451)—from 14 countries on four continents; 54% female; 188 Christian; 50 Muslim; 156 with no religion—completed a provisional 36‐item measure of SWB plus the EORTC QLQ‐C15‐PAL (PAL), then took part in a structured debriefing interview. All items showed good score distribution across response categories. We assessed scale structure using principal component analysis and Rasch analysis, and explored construct validity, and convergent/divergent validity with the PAL. Twenty‐two items in four scoring scales (Relationship with Self, Relationships with Others, Relationship with Someone or Something Greater, and Existential) explained 53% of the variance. The measure also includes a global SWB item and nine other items. Scores on the PAL global quality‐of‐life item and Emotional Functioning scale weakly‐moderately correlated with scores on the global SWB item and two of the four SWB scales. This new validated 32‐item SWB measure addresses a distinct aspect of quality‐of‐life, and is now available for use in research and clinical practice, with a role as both a measurement and an intervention tool. (PsycINFO Database Record (c) 2018 APA, all rights reserved)
Original languageEnglish
JournalEuropean Journal of Cancer Care
Volume26
Issue number6
DOIs
Publication statusPublished - 1 Nov 2017

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Islam
Validation Studies
Palliative Care
Interviews
Neoplasms

Keywords

  • EORTC
  • international
  • measure
  • palliative care
  • questionnaire
  • spiritual

Cite this

Vivat, B. ; Young, T. E. ; Winstanley, J. ; Arraras, J. I. ; Black, K. ; Boyle, F. ; Bredart, A. ; Costantini, A. ; Guo, J. ; Irarrazaval, M. E. ; Kobayashi, K. ; Kruizinga, R. ; Navarro, M. ; Omidvari, S. ; Rohde, G. E. ; Serpentini, S. ; Spry, N. ; Van Laarhoven, H. W.M. ; Yang, G. M. / The international phase 4 validation study of the EORTC QLQ-SWB32: A stand-alone measure of spiritual well-being for people receiving palliative care for cancer. In: European Journal of Cancer Care. 2017 ; Vol. 26, No. 6.
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abstract = "The EORTC Quality of Life Group has just completed the final phase (field‐testing and validation) of an international project to develop a stand‐alone measure of spiritual well‐being (SWB) for palliative cancer patients. Participants (n = 451)—from 14 countries on four continents; 54{\%} female; 188 Christian; 50 Muslim; 156 with no religion—completed a provisional 36‐item measure of SWB plus the EORTC QLQ‐C15‐PAL (PAL), then took part in a structured debriefing interview. All items showed good score distribution across response categories. We assessed scale structure using principal component analysis and Rasch analysis, and explored construct validity, and convergent/divergent validity with the PAL. Twenty‐two items in four scoring scales (Relationship with Self, Relationships with Others, Relationship with Someone or Something Greater, and Existential) explained 53{\%} of the variance. The measure also includes a global SWB item and nine other items. Scores on the PAL global quality‐of‐life item and Emotional Functioning scale weakly‐moderately correlated with scores on the global SWB item and two of the four SWB scales. This new validated 32‐item SWB measure addresses a distinct aspect of quality‐of‐life, and is now available for use in research and clinical practice, with a role as both a measurement and an intervention tool. (PsycINFO Database Record (c) 2018 APA, all rights reserved)",
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author = "B. Vivat and Young, {T. E.} and J. Winstanley and Arraras, {J. I.} and K. Black and F. Boyle and A. Bredart and A. Costantini and J. Guo and Irarrazaval, {M. E.} and K. Kobayashi and R. Kruizinga and M. Navarro and S. Omidvari and Rohde, {G. E.} and S. Serpentini and N. Spry and {Van Laarhoven}, {H. W.M.} and Yang, {G. M.}",
year = "2017",
month = "11",
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Vivat, B, Young, TE, Winstanley, J, Arraras, JI, Black, K, Boyle, F, Bredart, A, Costantini, A, Guo, J, Irarrazaval, ME, Kobayashi, K, Kruizinga, R, Navarro, M, Omidvari, S, Rohde, GE, Serpentini, S, Spry, N, Van Laarhoven, HWM & Yang, GM 2017, 'The international phase 4 validation study of the EORTC QLQ-SWB32: A stand-alone measure of spiritual well-being for people receiving palliative care for cancer', European Journal of Cancer Care, vol. 26, no. 6. https://doi.org/10.1111/ecc.12697

The international phase 4 validation study of the EORTC QLQ-SWB32: A stand-alone measure of spiritual well-being for people receiving palliative care for cancer. / Vivat, B.; Young, T. E.; Winstanley, J.; Arraras, J. I.; Black, K.; Boyle, F.; Bredart, A.; Costantini, A.; Guo, J.; Irarrazaval, M. E.; Kobayashi, K.; Kruizinga, R.; Navarro, M.; Omidvari, S.; Rohde, G. E.; Serpentini, S.; Spry, N.; Van Laarhoven, H. W.M.; Yang, G. M.

In: European Journal of Cancer Care, Vol. 26, No. 6, 01.11.2017.

Research output: Contribution to journalArticleScientificpeer-review

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AU - Vivat, B.

AU - Young, T. E.

AU - Winstanley, J.

AU - Arraras, J. I.

AU - Black, K.

AU - Boyle, F.

AU - Bredart, A.

AU - Costantini, A.

AU - Guo, J.

AU - Irarrazaval, M. E.

AU - Kobayashi, K.

AU - Kruizinga, R.

AU - Navarro, M.

AU - Omidvari, S.

AU - Rohde, G. E.

AU - Serpentini, S.

AU - Spry, N.

AU - Van Laarhoven, H. W.M.

AU - Yang, G. M.

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N2 - The EORTC Quality of Life Group has just completed the final phase (field‐testing and validation) of an international project to develop a stand‐alone measure of spiritual well‐being (SWB) for palliative cancer patients. Participants (n = 451)—from 14 countries on four continents; 54% female; 188 Christian; 50 Muslim; 156 with no religion—completed a provisional 36‐item measure of SWB plus the EORTC QLQ‐C15‐PAL (PAL), then took part in a structured debriefing interview. All items showed good score distribution across response categories. We assessed scale structure using principal component analysis and Rasch analysis, and explored construct validity, and convergent/divergent validity with the PAL. Twenty‐two items in four scoring scales (Relationship with Self, Relationships with Others, Relationship with Someone or Something Greater, and Existential) explained 53% of the variance. The measure also includes a global SWB item and nine other items. Scores on the PAL global quality‐of‐life item and Emotional Functioning scale weakly‐moderately correlated with scores on the global SWB item and two of the four SWB scales. This new validated 32‐item SWB measure addresses a distinct aspect of quality‐of‐life, and is now available for use in research and clinical practice, with a role as both a measurement and an intervention tool. (PsycINFO Database Record (c) 2018 APA, all rights reserved)

AB - The EORTC Quality of Life Group has just completed the final phase (field‐testing and validation) of an international project to develop a stand‐alone measure of spiritual well‐being (SWB) for palliative cancer patients. Participants (n = 451)—from 14 countries on four continents; 54% female; 188 Christian; 50 Muslim; 156 with no religion—completed a provisional 36‐item measure of SWB plus the EORTC QLQ‐C15‐PAL (PAL), then took part in a structured debriefing interview. All items showed good score distribution across response categories. We assessed scale structure using principal component analysis and Rasch analysis, and explored construct validity, and convergent/divergent validity with the PAL. Twenty‐two items in four scoring scales (Relationship with Self, Relationships with Others, Relationship with Someone or Something Greater, and Existential) explained 53% of the variance. The measure also includes a global SWB item and nine other items. Scores on the PAL global quality‐of‐life item and Emotional Functioning scale weakly‐moderately correlated with scores on the global SWB item and two of the four SWB scales. This new validated 32‐item SWB measure addresses a distinct aspect of quality‐of‐life, and is now available for use in research and clinical practice, with a role as both a measurement and an intervention tool. (PsycINFO Database Record (c) 2018 APA, all rights reserved)

KW - EORTC

KW - international

KW - measure

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KW - questionnaire

KW - spiritual

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