The perspective of patients with congenital heart disease: Does health care meet their needs?

D. Schoormans, Mirjam A.g. Sprangers, Petronella G. Pieper, Joost P. Van Melle, Arie P.j. Van Dijk, Gertjan Tj. Sieswerda, Mariët S. Hulsbergen-zwarts, Thijs H.w.m. Plokker, Leo G.h. Brunninkhuis, Hubert W. Vliegen, Barbara J.m. Mulder

Research output: Contribution to journalArticleScientificpeer-review

Abstract

Objective:
A first step in the delivery of tailored care is answering the following question: does health care meet the needs of patients? Therefore patients' perspective on health care use and their needs was examined. The design used was cross-sectional questionnaire study.
Patients:
A total of 1109 adult congenital heart defect (CHD) patients attending one of eight Dutch hospitals were randomly selected from a national database (10% of all registered patients).
Main outcome measures:
Patient reported questionnaires on in- and outpatient health care use during the past year and need for additional care.
Results:
A total of 66% and 40% of patients had contact with their cardiologist and general practitioner, respectively. Six to 10 percent were hospitalized, operated upon, or visited the emergency room. For the majority, the amount of contact was sufficient. Most patients indicated that the communication skills and expertise of the cardiologist and general practitioner were sufficient, and health care improvements were not necessary. Frequent health care users had a poor functional status and frequent contact with their cardiologist and general practitioner. Patients who want more contact with their cardiologist rated the communication skills of the cardiologist as insufficient.
Conclusions:
For most patients, the amount and quality of care are both sufficient. Patients who rate the communication skills of the cardiologist as insufficient have need more contact. In addition to the recommended training program as described in the American College of Cardiology/American Heart Association (ACC/AHA) and European Society of Cardiology (ESC) guidelines, we recommend the incorporation of communication training. This is the first study to provide insight into health care use and needs of CHD patients in countries with a compulsory health insurance system from the patient perspective.
Original languageEnglish
Pages (from-to)219-227
JournalCongenital Heart Disease
Volume6
Issue number3
DOIs
Publication statusPublished - 2011
Externally publishedYes

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Delivery of Health Care
Communication
General Practitioners
Cardiologists
Inpatients
Cross-Sectional Studies
Databases
Education

Cite this

Schoormans, D., Sprangers, M. A. G., Pieper, P. G., Van Melle, J. P., Van Dijk, A. P. J., Sieswerda, G. T., ... Mulder, B. J. M. (2011). The perspective of patients with congenital heart disease: Does health care meet their needs? Congenital Heart Disease , 6(3), 219-227. https://doi.org/10.1111/j.1747-0803.2011.00521.x
Schoormans, D. ; Sprangers, Mirjam A.g. ; Pieper, Petronella G. ; Van Melle, Joost P. ; Van Dijk, Arie P.j. ; Sieswerda, Gertjan Tj. ; Hulsbergen-zwarts, Mariët S. ; Plokker, Thijs H.w.m. ; Brunninkhuis, Leo G.h. ; Vliegen, Hubert W. ; Mulder, Barbara J.m. / The perspective of patients with congenital heart disease : Does health care meet their needs?. In: Congenital Heart Disease . 2011 ; Vol. 6, No. 3. pp. 219-227.
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title = "The perspective of patients with congenital heart disease: Does health care meet their needs?",
abstract = "Objective:A first step in the delivery of tailored care is answering the following question: does health care meet the needs of patients? Therefore patients' perspective on health care use and their needs was examined. The design used was cross-sectional questionnaire study.Patients:A total of 1109 adult congenital heart defect (CHD) patients attending one of eight Dutch hospitals were randomly selected from a national database (10{\%} of all registered patients).Main outcome measures:Patient reported questionnaires on in- and outpatient health care use during the past year and need for additional care.Results:A total of 66{\%} and 40{\%} of patients had contact with their cardiologist and general practitioner, respectively. Six to 10 percent were hospitalized, operated upon, or visited the emergency room. For the majority, the amount of contact was sufficient. Most patients indicated that the communication skills and expertise of the cardiologist and general practitioner were sufficient, and health care improvements were not necessary. Frequent health care users had a poor functional status and frequent contact with their cardiologist and general practitioner. Patients who want more contact with their cardiologist rated the communication skills of the cardiologist as insufficient.Conclusions:For most patients, the amount and quality of care are both sufficient. Patients who rate the communication skills of the cardiologist as insufficient have need more contact. In addition to the recommended training program as described in the American College of Cardiology/American Heart Association (ACC/AHA) and European Society of Cardiology (ESC) guidelines, we recommend the incorporation of communication training. This is the first study to provide insight into health care use and needs of CHD patients in countries with a compulsory health insurance system from the patient perspective.",
author = "D. Schoormans and Sprangers, {Mirjam A.g.} and Pieper, {Petronella G.} and {Van Melle}, {Joost P.} and {Van Dijk}, {Arie P.j.} and Sieswerda, {Gertjan Tj.} and Hulsbergen-zwarts, {Mari{\"e}t S.} and Plokker, {Thijs H.w.m.} and Brunninkhuis, {Leo G.h.} and Vliegen, {Hubert W.} and Mulder, {Barbara J.m.}",
year = "2011",
doi = "10.1111/j.1747-0803.2011.00521.x",
language = "English",
volume = "6",
pages = "219--227",
journal = "Congenital Heart Disease",
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}

Schoormans, D, Sprangers, MAG, Pieper, PG, Van Melle, JP, Van Dijk, APJ, Sieswerda, GT, Hulsbergen-zwarts, MS, Plokker, THWM, Brunninkhuis, LGH, Vliegen, HW & Mulder, BJM 2011, 'The perspective of patients with congenital heart disease: Does health care meet their needs?' Congenital Heart Disease , vol. 6, no. 3, pp. 219-227. https://doi.org/10.1111/j.1747-0803.2011.00521.x

The perspective of patients with congenital heart disease : Does health care meet their needs? / Schoormans, D.; Sprangers, Mirjam A.g.; Pieper, Petronella G.; Van Melle, Joost P.; Van Dijk, Arie P.j.; Sieswerda, Gertjan Tj.; Hulsbergen-zwarts, Mariët S.; Plokker, Thijs H.w.m.; Brunninkhuis, Leo G.h.; Vliegen, Hubert W.; Mulder, Barbara J.m.

In: Congenital Heart Disease , Vol. 6, No. 3, 2011, p. 219-227.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - The perspective of patients with congenital heart disease

T2 - Does health care meet their needs?

AU - Schoormans, D.

AU - Sprangers, Mirjam A.g.

AU - Pieper, Petronella G.

AU - Van Melle, Joost P.

AU - Van Dijk, Arie P.j.

AU - Sieswerda, Gertjan Tj.

AU - Hulsbergen-zwarts, Mariët S.

AU - Plokker, Thijs H.w.m.

AU - Brunninkhuis, Leo G.h.

AU - Vliegen, Hubert W.

AU - Mulder, Barbara J.m.

PY - 2011

Y1 - 2011

N2 - Objective:A first step in the delivery of tailored care is answering the following question: does health care meet the needs of patients? Therefore patients' perspective on health care use and their needs was examined. The design used was cross-sectional questionnaire study.Patients:A total of 1109 adult congenital heart defect (CHD) patients attending one of eight Dutch hospitals were randomly selected from a national database (10% of all registered patients).Main outcome measures:Patient reported questionnaires on in- and outpatient health care use during the past year and need for additional care.Results:A total of 66% and 40% of patients had contact with their cardiologist and general practitioner, respectively. Six to 10 percent were hospitalized, operated upon, or visited the emergency room. For the majority, the amount of contact was sufficient. Most patients indicated that the communication skills and expertise of the cardiologist and general practitioner were sufficient, and health care improvements were not necessary. Frequent health care users had a poor functional status and frequent contact with their cardiologist and general practitioner. Patients who want more contact with their cardiologist rated the communication skills of the cardiologist as insufficient.Conclusions:For most patients, the amount and quality of care are both sufficient. Patients who rate the communication skills of the cardiologist as insufficient have need more contact. In addition to the recommended training program as described in the American College of Cardiology/American Heart Association (ACC/AHA) and European Society of Cardiology (ESC) guidelines, we recommend the incorporation of communication training. This is the first study to provide insight into health care use and needs of CHD patients in countries with a compulsory health insurance system from the patient perspective.

AB - Objective:A first step in the delivery of tailored care is answering the following question: does health care meet the needs of patients? Therefore patients' perspective on health care use and their needs was examined. The design used was cross-sectional questionnaire study.Patients:A total of 1109 adult congenital heart defect (CHD) patients attending one of eight Dutch hospitals were randomly selected from a national database (10% of all registered patients).Main outcome measures:Patient reported questionnaires on in- and outpatient health care use during the past year and need for additional care.Results:A total of 66% and 40% of patients had contact with their cardiologist and general practitioner, respectively. Six to 10 percent were hospitalized, operated upon, or visited the emergency room. For the majority, the amount of contact was sufficient. Most patients indicated that the communication skills and expertise of the cardiologist and general practitioner were sufficient, and health care improvements were not necessary. Frequent health care users had a poor functional status and frequent contact with their cardiologist and general practitioner. Patients who want more contact with their cardiologist rated the communication skills of the cardiologist as insufficient.Conclusions:For most patients, the amount and quality of care are both sufficient. Patients who rate the communication skills of the cardiologist as insufficient have need more contact. In addition to the recommended training program as described in the American College of Cardiology/American Heart Association (ACC/AHA) and European Society of Cardiology (ESC) guidelines, we recommend the incorporation of communication training. This is the first study to provide insight into health care use and needs of CHD patients in countries with a compulsory health insurance system from the patient perspective.

U2 - 10.1111/j.1747-0803.2011.00521.x

DO - 10.1111/j.1747-0803.2011.00521.x

M3 - Article

VL - 6

SP - 219

EP - 227

JO - Congenital Heart Disease

JF - Congenital Heart Disease

SN - 1873-734X

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ER -