The use of EORTC measures in daily clinical practice

A synopsis of a newly developed manual

Lisa M. Wintner, Monika Sztankay, Neil Aaronson, Andrew Bottomley, Johannes M. Giesinger, Mogens Groenvold, Morten Aa Petersen, L.V. van de Poll-Franse, Galina Velikova, Irma Verdonck-de Leeuw, Bernhard Holzner

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Abstract

Cancer has increasingly become a chronic condition and the routine collection of patient-reported outcomes (PROs) like quality of life is widely recommended for clinical practice. Nonetheless, the successful implementation of PROs is still a major challenge, although common barriers to and facilitators of their beneficial use are well known. To support health care professionals and other stakeholders in the implementation of the EORTC PRO measures, the EORTC Quality of Life Group provides guidance on issues considered important for their use in daily clinical practice. Herein, we present an outline of the newly developed “'Manual for the use of EORTC measures in daily clinical practice”, covering the following issues: * a rationale for using EORTC measures in routine care *selection of EORTC measures, timing of assessments, scoring and presentation of results * aspects of a strategic implementation * electronic data assessment and telemonitoring, and * further use of EORTC measures and ethical considerations. Next to an extensive overview of currently available literature, the manual specifically focuses on knowledge about EORTC measures to give evidence-based recommendations whenever possible and to encourage readers and end-users of EORTC measures to contribute to further needed high-quality research. The manual will be accessible on the EORTC Quality of Life Group website's homepage and will be periodically updated to take into account any new knowledge due to medical, technical, regulatory and scientific advances.
Keywords: EORTC Quality of Life Group, Patient-reported outcomes, Quality of life, Neoplasms, Manual, Implementation, Daily clinical routine, Guideline

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Wintner, Lisa M. ; Sztankay, Monika ; Aaronson, Neil ; Bottomley, Andrew ; Giesinger, Johannes M. ; Groenvold, Mogens ; Petersen, Morten Aa ; van de Poll-Franse, L.V. ; Velikova, Galina ; Verdonck-de Leeuw, Irma ; Holzner, Bernhard. / The use of EORTC measures in daily clinical practice : A synopsis of a newly developed manual. In: European Journal of Cancer: Official journal for European Organization for Research and Treatment of Cancer (EORTC). 2016 ; Vol. 68. pp. 73-81.
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abstract = "Cancer has increasingly become a chronic condition and the routine collection of patient-reported outcomes (PROs) like quality of life is widely recommended for clinical practice. Nonetheless, the successful implementation of PROs is still a major challenge, although common barriers to and facilitators of their beneficial use are well known. To support health care professionals and other stakeholders in the implementation of the EORTC PRO measures, the EORTC Quality of Life Group provides guidance on issues considered important for their use in daily clinical practice. Herein, we present an outline of the newly developed “'Manual for the use of EORTC measures in daily clinical practice”, covering the following issues: * a rationale for using EORTC measures in routine care *selection of EORTC measures, timing of assessments, scoring and presentation of results * aspects of a strategic implementation * electronic data assessment and telemonitoring, and * further use of EORTC measures and ethical considerations. Next to an extensive overview of currently available literature, the manual specifically focuses on knowledge about EORTC measures to give evidence-based recommendations whenever possible and to encourage readers and end-users of EORTC measures to contribute to further needed high-quality research. The manual will be accessible on the EORTC Quality of Life Group website's homepage and will be periodically updated to take into account any new knowledge due to medical, technical, regulatory and scientific advances.Keywords: EORTC Quality of Life Group, Patient-reported outcomes, Quality of life, Neoplasms, Manual, Implementation, Daily clinical routine, Guideline",
author = "Wintner, {Lisa M.} and Monika Sztankay and Neil Aaronson and Andrew Bottomley and Giesinger, {Johannes M.} and Mogens Groenvold and Petersen, {Morten Aa} and {van de Poll-Franse}, L.V. and Galina Velikova and {Verdonck-de Leeuw}, Irma and Bernhard Holzner",
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The use of EORTC measures in daily clinical practice : A synopsis of a newly developed manual. / Wintner, Lisa M.; Sztankay, Monika; Aaronson, Neil; Bottomley, Andrew; Giesinger, Johannes M.; Groenvold, Mogens; Petersen, Morten Aa; van de Poll-Franse, L.V.; Velikova, Galina; Verdonck-de Leeuw, Irma; Holzner, Bernhard.

In: European Journal of Cancer: Official journal for European Organization for Research and Treatment of Cancer (EORTC), Vol. 68, 01.11.2016, p. 73-81.

Research output: Contribution to journalArticleScientificpeer-review

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AU - Bottomley, Andrew

AU - Giesinger, Johannes M.

AU - Groenvold, Mogens

AU - Petersen, Morten Aa

AU - van de Poll-Franse, L.V.

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AU - Verdonck-de Leeuw, Irma

AU - Holzner, Bernhard

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N2 - Cancer has increasingly become a chronic condition and the routine collection of patient-reported outcomes (PROs) like quality of life is widely recommended for clinical practice. Nonetheless, the successful implementation of PROs is still a major challenge, although common barriers to and facilitators of their beneficial use are well known. To support health care professionals and other stakeholders in the implementation of the EORTC PRO measures, the EORTC Quality of Life Group provides guidance on issues considered important for their use in daily clinical practice. Herein, we present an outline of the newly developed “'Manual for the use of EORTC measures in daily clinical practice”, covering the following issues: * a rationale for using EORTC measures in routine care *selection of EORTC measures, timing of assessments, scoring and presentation of results * aspects of a strategic implementation * electronic data assessment and telemonitoring, and * further use of EORTC measures and ethical considerations. Next to an extensive overview of currently available literature, the manual specifically focuses on knowledge about EORTC measures to give evidence-based recommendations whenever possible and to encourage readers and end-users of EORTC measures to contribute to further needed high-quality research. The manual will be accessible on the EORTC Quality of Life Group website's homepage and will be periodically updated to take into account any new knowledge due to medical, technical, regulatory and scientific advances.Keywords: EORTC Quality of Life Group, Patient-reported outcomes, Quality of life, Neoplasms, Manual, Implementation, Daily clinical routine, Guideline

AB - Cancer has increasingly become a chronic condition and the routine collection of patient-reported outcomes (PROs) like quality of life is widely recommended for clinical practice. Nonetheless, the successful implementation of PROs is still a major challenge, although common barriers to and facilitators of their beneficial use are well known. To support health care professionals and other stakeholders in the implementation of the EORTC PRO measures, the EORTC Quality of Life Group provides guidance on issues considered important for their use in daily clinical practice. Herein, we present an outline of the newly developed “'Manual for the use of EORTC measures in daily clinical practice”, covering the following issues: * a rationale for using EORTC measures in routine care *selection of EORTC measures, timing of assessments, scoring and presentation of results * aspects of a strategic implementation * electronic data assessment and telemonitoring, and * further use of EORTC measures and ethical considerations. Next to an extensive overview of currently available literature, the manual specifically focuses on knowledge about EORTC measures to give evidence-based recommendations whenever possible and to encourage readers and end-users of EORTC measures to contribute to further needed high-quality research. The manual will be accessible on the EORTC Quality of Life Group website's homepage and will be periodically updated to take into account any new knowledge due to medical, technical, regulatory and scientific advances.Keywords: EORTC Quality of Life Group, Patient-reported outcomes, Quality of life, Neoplasms, Manual, Implementation, Daily clinical routine, Guideline

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JF - European Journal of Cancer: Official journal for European Organization for Research and Treatment of Cancer (EORTC)

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