Towards a sustainable EU health information system infrastructure

A consensus driven approach

BRIDGE Hlth, Petronille Bogaert*, J.A.M. van Oers, Herman Van Oyen

*Corresponding author for this work

Research output: Contribution to journalArticleScientificpeer-review

Abstract

Background: 

Health information in the EU is characterised by diversity and fragmentation of health information infrastructures. A well-defined and sustainable EU health information system infrastructure is lacking. The potential of a European Research Infrastructure Consortium on Health Information for Research and Evidence-based Policy (HIREP-ERIC) to take up this role is investigated.

Methods: 

Two working groups, a BRIDGE Health Steering Committee and the European Commission's Drafting Group of the Expert Group on Health Information, discussed the technical and scientific description of the HIREP-ERIC through a consensus-driven modified Delphi technique.

Results: 

Consensus was reached on three aspects of the HIREP-ERIC. First, it was defined as an infrastructure that facilitates interaction of networks and experts in health information by providing central governance and a more permanent collaboration. Second, the infrastructure should be distributed, with a central hub coordinating the operation of distributed networks. Third, it should provide easy access to high quality and comparable data for purposes of research and policy making, and focus its activities around generating, managing, exchanging and translating health information.

Conclusion: 

A momentum has been created where representatives from 16 European countries agreed on the HIREP-ERIC as a pragmatic bottom-up approach to strengthen the current EU health information landscape. A Member States' commitment is needed at senior political level to make this consensus operational. (C) 2018 Elsevier B.V. All rights reserved.

Original languageEnglish
Pages (from-to)1340-1347
JournalHealth Policy
Volume122
Issue number12
DOIs
Publication statusPublished - 2018

Keywords

  • European Union
  • Health information system
  • Health and health system monitoring
  • BRIDGE health
  • Joint Action on Health Information
  • InfAct
  • DELPHI

Cite this

@article{ac9ad48094674781aae0876d1520fde5,
title = "Towards a sustainable EU health information system infrastructure: A consensus driven approach",
abstract = "Background: Health information in the EU is characterised by diversity and fragmentation of health information infrastructures. A well-defined and sustainable EU health information system infrastructure is lacking. The potential of a European Research Infrastructure Consortium on Health Information for Research and Evidence-based Policy (HIREP-ERIC) to take up this role is investigated.Methods: Two working groups, a BRIDGE Health Steering Committee and the European Commission's Drafting Group of the Expert Group on Health Information, discussed the technical and scientific description of the HIREP-ERIC through a consensus-driven modified Delphi technique.Results: Consensus was reached on three aspects of the HIREP-ERIC. First, it was defined as an infrastructure that facilitates interaction of networks and experts in health information by providing central governance and a more permanent collaboration. Second, the infrastructure should be distributed, with a central hub coordinating the operation of distributed networks. Third, it should provide easy access to high quality and comparable data for purposes of research and policy making, and focus its activities around generating, managing, exchanging and translating health information.Conclusion: A momentum has been created where representatives from 16 European countries agreed on the HIREP-ERIC as a pragmatic bottom-up approach to strengthen the current EU health information landscape. A Member States' commitment is needed at senior political level to make this consensus operational. (C) 2018 Elsevier B.V. All rights reserved.",
keywords = "European Union, Health information system, Health and health system monitoring, BRIDGE health, Joint Action on Health Information, InfAct, DELPHI",
author = "{BRIDGE Hlth} and Petronille Bogaert and {van Oers}, J.A.M. and {Van Oyen}, Herman",
year = "2018",
doi = "10.1016/j.healthpol.2018.10.009",
language = "English",
volume = "122",
pages = "1340--1347",
journal = "Health Policy",
issn = "0168-8510",
publisher = "Elsevier Ireland Ltd",
number = "12",

}

Towards a sustainable EU health information system infrastructure : A consensus driven approach. / BRIDGE Hlth ; Bogaert, Petronille; van Oers, J.A.M.; Van Oyen, Herman.

In: Health Policy, Vol. 122, No. 12, 2018, p. 1340-1347.

Research output: Contribution to journalArticleScientificpeer-review

TY - JOUR

T1 - Towards a sustainable EU health information system infrastructure

T2 - A consensus driven approach

AU - BRIDGE Hlth

AU - Bogaert, Petronille

AU - van Oers, J.A.M.

AU - Van Oyen, Herman

PY - 2018

Y1 - 2018

N2 - Background: Health information in the EU is characterised by diversity and fragmentation of health information infrastructures. A well-defined and sustainable EU health information system infrastructure is lacking. The potential of a European Research Infrastructure Consortium on Health Information for Research and Evidence-based Policy (HIREP-ERIC) to take up this role is investigated.Methods: Two working groups, a BRIDGE Health Steering Committee and the European Commission's Drafting Group of the Expert Group on Health Information, discussed the technical and scientific description of the HIREP-ERIC through a consensus-driven modified Delphi technique.Results: Consensus was reached on three aspects of the HIREP-ERIC. First, it was defined as an infrastructure that facilitates interaction of networks and experts in health information by providing central governance and a more permanent collaboration. Second, the infrastructure should be distributed, with a central hub coordinating the operation of distributed networks. Third, it should provide easy access to high quality and comparable data for purposes of research and policy making, and focus its activities around generating, managing, exchanging and translating health information.Conclusion: A momentum has been created where representatives from 16 European countries agreed on the HIREP-ERIC as a pragmatic bottom-up approach to strengthen the current EU health information landscape. A Member States' commitment is needed at senior political level to make this consensus operational. (C) 2018 Elsevier B.V. All rights reserved.

AB - Background: Health information in the EU is characterised by diversity and fragmentation of health information infrastructures. A well-defined and sustainable EU health information system infrastructure is lacking. The potential of a European Research Infrastructure Consortium on Health Information for Research and Evidence-based Policy (HIREP-ERIC) to take up this role is investigated.Methods: Two working groups, a BRIDGE Health Steering Committee and the European Commission's Drafting Group of the Expert Group on Health Information, discussed the technical and scientific description of the HIREP-ERIC through a consensus-driven modified Delphi technique.Results: Consensus was reached on three aspects of the HIREP-ERIC. First, it was defined as an infrastructure that facilitates interaction of networks and experts in health information by providing central governance and a more permanent collaboration. Second, the infrastructure should be distributed, with a central hub coordinating the operation of distributed networks. Third, it should provide easy access to high quality and comparable data for purposes of research and policy making, and focus its activities around generating, managing, exchanging and translating health information.Conclusion: A momentum has been created where representatives from 16 European countries agreed on the HIREP-ERIC as a pragmatic bottom-up approach to strengthen the current EU health information landscape. A Member States' commitment is needed at senior political level to make this consensus operational. (C) 2018 Elsevier B.V. All rights reserved.

KW - European Union

KW - Health information system

KW - Health and health system monitoring

KW - BRIDGE health

KW - Joint Action on Health Information

KW - InfAct

KW - DELPHI

U2 - 10.1016/j.healthpol.2018.10.009

DO - 10.1016/j.healthpol.2018.10.009

M3 - Article

VL - 122

SP - 1340

EP - 1347

JO - Health Policy

JF - Health Policy

SN - 0168-8510

IS - 12

ER -