Using PROMs during routine medical consultations: The perspectives of people with Parkinson’s disease and their health professionals

O.C. Damman*, M.E.A. Verbiest, S.I. Vonk, H.W. Berendse, B.R. Bloem, M.C. de Bruijne, M.J. Faber

*Corresponding author for this work

Research output: Contribution to journalArticleScientificpeer-review

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Abstract

Background
The use of patient‐reported outcomes measures (PROMs), such as quality of life or symptoms like pain or fatigue, is increasingly embraced within patient‐centred care and shared decision making.

Objectives
To investigate: (a) how patients and health professionals think about using PROMs during routine medical consultations; (b) for which purpose(s), patients and health professionals want to use PROMs during those consultations; and (c) how patients interpret PROMs information presented in various formats. People with Parkinson's disease and their health professionals served as case example.

Methods
We performed semi‐structured interviews with patients (N = 13) and professionals (N = 7 neurologists; N = 7 physiotherapists). We also used a survey in which patients (N = 115) were shown six figures displaying different information types. Presentation formats of this information varied (line/bar graphs). Interpretation by patients, perceived usefulness of information, attitude towards using information during routine medical consultations and (hypothetical) decisions were assessed.

Findings
Patients and professionals were generally positive about using PROMs during medical consultations. Professionals stressed the opportunity to monitor changes in individual PROMs over time. Patients were primarily positive about aggregated PROMs to make treatment decisions. This information was also most often interpreted correctly, especially when presented through a line graph (90.1% correct). Professionals thought patients should take the initiative in discussing PROMs, whereas patients thought professionals should do so.

Conclusion/Discussion
When used in routine medical consultations, PROMs seem to have potential to support shared decision making and facilitate patient‐professional communication. However, training seems needed for both patients and professionals to facilitate actual discussion and proper interpretation.
Original languageEnglish
Pages (from-to)939-951
JournalHealth Expectations
Volume22
Issue number5
DOIs
Publication statusPublished - 2019

Keywords

  • ASSESSMENTS
  • CANCER-PATIENTS
  • CARE
  • CLINICAL-PRACTICE
  • IMPROVE
  • INFORMATION
  • PATIENT
  • QUALITY-OF-LIFE
  • REPORTED OUTCOME MEASURES
  • SHARED DECISION-MAKING
  • patient perspective
  • patient-reported outcome measures
  • professional perspective
  • shared decision making

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