Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic

Marieke Westerman-den Boer*, Moniek Voermans, Petri Embregts

*Corresponding author for this work

Research output: Contribution to journalArticleScientificpeer-review

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Abstract

Background
Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic.

Methods
A qualitative study using three case studies. Transcripts were analysed using Interpretative Phenomenological Analysis.

Results
Two overarching themes with various subthemes emerged. The first theme focuses on the impact of being a mother of a young adult with profound intellectual and multiple disabilities who lives at home during the COVID-19 pandemic. The second theme describes both the vulnerability and resilience of the broader system, as well as its need to experience togetherness.

Conclusions
Families of a young adult with profound intellectual and multiple disabilities exhibit both resilience and vulnerability during the COVID-19 pandemic, underscoring the importance to support and promote the visibility of these families.
Original languageEnglish
Pages (from-to)215-223
JournalJournal of Intellectual and Developmental Disability
Volume48
Issue number2
DOIs
Publication statusPublished - 2023

Keywords

  • COVID-19
  • Profound intellectual and multiple disabilities
  • interpretative phenomenological analysis
  • mothers

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