Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic

Marieke Westerman-den Boer; Moniek Voermans; Petri Embregts

doi:10.3109/13668250.2022.2135174

Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic

Marieke Westerman-den Boer^*
, Moniek Voermans
, Petri Embregts

^*Corresponding author for this work

Research output: Contribution to journal › Article › Scientific › peer-review

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Abstract

Background
Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic.

Methods
A qualitative study using three case studies. Transcripts were analysed using Interpretative Phenomenological Analysis.

Results
Two overarching themes with various subthemes emerged. The first theme focuses on the impact of being a mother of a young adult with profound intellectual and multiple disabilities who lives at home during the COVID-19 pandemic. The second theme describes both the vulnerability and resilience of the broader system, as well as its need to experience togetherness.

Conclusions
Families of a young adult with profound intellectual and multiple disabilities exhibit both resilience and vulnerability during the COVID-19 pandemic, underscoring the importance to support and promote the visibility of these families.

Original language	English
Pages (from-to)	215-223
Journal	Journal of Intellectual and Developmental Disability
Volume	48
Issue number	2
DOIs	https://doi.org/10.3109/13668250.2022.2135174
Publication status	Published - 2023

Keywords

COVID-19
Profound intellectual and multiple disabilities
interpretative phenomenological analysis
mothers

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Tranzo Westerman-den Boer vulnerable but stronger together JoIaDD 2023Final published version, 1.25 MBLicence: CC BY

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1 Other contribution

Impact coronapandemie op moeders van een kind met een ernstig verstandelijke en meervoudige beperking: ‘We zijn kwetsbaar, maar samen staan we sterker’
Westerman-den Boer, M., Voermans, M. & Embregts, P., 2024, 2 p. Academische werkplaats leven met een verstandelijke beperking.
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Westerman-den Boer, M., Voermans, M., & Embregts, P. (2023). Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic. Journal of Intellectual and Developmental Disability, 48(2), 215-223. https://doi.org/10.3109/13668250.2022.2135174

Westerman-den Boer, Marieke ; Voermans, Moniek ; Embregts, Petri. / Vulnerable but stronger together : An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic. In: Journal of Intellectual and Developmental Disability. 2023 ; Vol. 48, No. 2. pp. 215-223.

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abstract = "Background Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic. Methods A qualitative study using three case studies. Transcripts were analysed using Interpretative Phenomenological Analysis. Results Two overarching themes with various subthemes emerged. The first theme focuses on the impact of being a mother of a young adult with profound intellectual and multiple disabilities who lives at home during the COVID-19 pandemic. The second theme describes both the vulnerability and resilience of the broader system, as well as its need to experience togetherness. Conclusions Families of a young adult with profound intellectual and multiple disabilities exhibit both resilience and vulnerability during the COVID-19 pandemic, underscoring the importance to support and promote the visibility of these families.",

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Westerman-den Boer, M, Voermans, M & Embregts, P 2023, 'Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic', Journal of Intellectual and Developmental Disability, vol. 48, no. 2, pp. 215-223. https://doi.org/10.3109/13668250.2022.2135174

Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic. / Westerman-den Boer, Marieke; Voermans, Moniek; Embregts, Petri.
In: Journal of Intellectual and Developmental Disability, Vol. 48, No. 2, 2023, p. 215-223.

Research output: Contribution to journal › Article › Scientific › peer-review

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Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic

Abstract

Keywords

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Research output

Impact coronapandemie op moeders van een kind met een ernstig verstandelijke en meervoudige beperking: ‘We zijn kwetsbaar, maar samen staan we sterker’

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